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MND Awareness Week

Awareness Week 2016 – What Happened

In the run up to MND Awareness Week, from 14th – 16th June, we held an exhibition in the Scottish Parliament. This was a great opportunity to highlight our work and the services we provide for people affected by MND, to new and returning MSPs.  We talked about our Awareness Week campaign to #CureMND to party leaders, members of the health committee and MSPs from across the country and all… read more »

Awareness Week 2016

20 – 26 June International MND Awareness Day takes place on 21st June. It gives people affected by MND and MND charities across the world an opportunity to raise awareness of the illness and highlight its impact on those affected. This year, as always, we will be doing everything we can to raise awareness and increase understanding of the illness, across Scotland. We know from recent surveys and speaking to… read more »


Join us on ALS/MND Global Day, 21 June 2014. About The Campaign MND Scotland, together with other motor neurone disease organisations from around the world, are looking to engage with professional sports people from a number of sports, including rugby, American football, soccer, ultra-marathon running, tennis and swimming with the aim of raising awareness of Motor Neurone Disease (also known as ALS in different parts of the world). We are… read more »

Gordon Aikman Shares His Story

  At the start of MND Awareness Week, Gordon Aikman, who has been recently diagnosed with MND, shares his story with the Scotland on Sunday.  Gordon explains how he has come to terms with his diagnosis, at the age of just 29. He has moved so many people with his personal account that his story has spread across Twitter.  Gordon is Director of Research for Better Together and messages of… read more »

MND Awareness Week 2014

16th to 22nd June International MND Awareness Day took place on 21st June and provided an opportunity to raise awareness of the illness across the world. During MND Awareness Week, MND Scotland, people with MND, their families and friends promoted awareness of MND here in Scotland. Here is a sample of just some of the things that happened: Gordon Aikman, recently diagnosed with MND at the age of just 29, shared his moving and inspirational personal story with the… read more »

Global MND awareness day 2013

  It’s Global MND Awareness Day, the last day of MND Awareness Week 2013. Let’s have a look at what’s been going on over the past few days and in the weeks running up to this very important period in MND Scotland’s calendar.   The Power of Online Social Networks   Facebook and Twitter have been an essential way to raise awareness this year. On Facebook there have been record breaking… read more »

Invite your MSP to MND Scotland’s Parliamentary Reception

Help encourage your local MSP to attend our forthcoming reception at the Scottish Parliament Garden Lobby by contacting them directly via the Scottish Parliament website. Your local MSP details can be found by simply entering your own postcode here… Tell them when the event takes place (12th June, 6pm – 8pm) and your own personal story and why you feel they should take more interest in the challenges that people with MND,… read more »

Awareness Week 2013 14-21 June

Spread the Word MND Scotland encourages supporters to help spread awareness of Motor Neurone Disease and the charity’s Welfare Reform campaign ‘Time to benefit people with MND’. There are a number of hints, tips and access to awareness raising material via the website. By spreading the word about Motor Neurone Disease and MND Scotland you could help us to inform people about the effects of the illness, the services of MND… read more »

Thoughts from an MND research scientist: The cycle of research

Ideas and application, Funding and experimentation, Thinking.   Results and deliberation, Writing and publication, Understanding.  Insights and appreciation, Treating and amelioration, Helping.   By Dr Simon H Parson Senior Lecturer in Anatomy Euan MacDonald Centre for Motor Neurone Disease Research University of Edinburgh

‘Verses of the MND Community’ Now Online

Launched on Global MND Awareness Day 2012 On the 21st June 2012, MND Scotland’s book of poetry, ‘Verses of the MND Community’, was put online for the world to read. It began with an inspiring response in March to poems written by people with MND; these were published on our website and shared with others on our Facebook page. The sharing on Facebook and positive comments from those who read the poems encouraged… read more »

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