Policy and Campaigns
Gordon Aikman launches his 5-point fightback website, gordonsfightback.com today. Read all about it and get involved. During MND Awareness Week in June, Gordon, who was recently diagnosed with MND at the age of just 29, shared his moving and inspirational personal story with the press. Gordon’s story was soon picked up on Twitter and retweeted by a wide range of influential people including the First Minister, Alex Salmond, Ed Miliband… read more »
On Wednesday evening, in the middle of MND Awareness Week, 40 MSPs attended MND Scotland’s Parliamentary Reception to speak to our 90 guests and hear about issues important to them. Our guests were predominantly people with MND, their families and friends, and supporters of the charity. 40 MSPs is a really high turnout for an event like this and we welcomed the opportunity to raise awareness of MND, MND Scotland… read more »
MND Scotland’s Awareness Week Reception takes place at the Scottish Parliament tonight. Christina McKelvie MSP is sponsoring the event and Public Health Minister, Michael Matheson MSP, is our guest speaker. Over 90 guests will be hoping to speak to their MSPs about issues that matter to them. MND Scotland will highlight a number of issues including our Personal Care Charging Campaign which was positively responded to in Parliament yesterday.
Background Personal care, provided by local authorities for people who need it at home, can include help with washing, feeding, dressing, toileting and getting in and out of bed. Since 2002, people over 65 years in Scotland have received free personal care. People under 65 years, who require personal care, are financially assessed by their local authorities to ascertain whether or not they should make a contribution. What’s the problem?… read more »
MND Scotland’s 2014 Parliamentary reception, marking MND Awareness Week, will take place in the Garden Lobby of the Scottish Parliament on the evening of Wednesday 18th June. Christina McKelvie MSP, who lost her father to MND, will again host the event and our guest speaker is Minister for Public Health, Michael Matheson MSP. The reception will provide an opportunity to raise awareness of MND, the issues those with the illness… read more »
The Scottish Parliament’s Health and Sport Committee is seeking views on the Assisted Suicide (Scotland) Bill. The Committee states that the Bill would provide a means for certain people who are approaching the end of their lives to seek assistance to end their lives at a time of their choosing. If you would like to respond to the Committee’s ‘call for written evidence’, you can access the consultation here. … read more »
Following the publication of the Independent Review of NHS Continuing Healthcare in Scotland on Friday 2nd May, MND Scotland was greatly concerned to read the recommendation that this package of care for people with complex health care needs should be replaced with a system which would only meet the care costs of people in hospital. MND Scotland was pleased to hear Cabinet Secretary for Health and Wellbeing, Alex Neil… read more »
Last year, Cabinet Secretary for Health and Wellbeing, Alex Neil MSP, set up an independent review into NHS Continuing Healthcare in Scotland, following claims that people who should have been receiving it, were not. NHS Continuing Healthcare is a package of health care for people with complex health care needs. It allows them to receive this care outside the hospital setting and is fully funded by the NHS. However,… read more »
Personal Independence Payment delays Decisions ‘can take about 21 to 26 weeks’ says DWP The length of time disabled people are having to wait to find out if they are eligible for Personal Independence Payment (PIP) is unacceptable, says the Work and Pensions Committee. The majority of people applying for PIP undergo a face-to-face assessment to determine eligibility, which is carried out by private contractors. But some claims are… read more »
Carers’ Legislation: Online Questionnaire Do you, or have you recently (in the last 2 years), provide/d care for a loved one with MND? If so, the Scottish Government is consulting on new carers’ legislation and would like to hear your views. If you would like to get involved, we would really appreciate you completing MND Scotland’s questionnaire by Friday 11th April.