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Policy and Campaigns

Now Hear Me: It’s My Right To Speak

Not everyone has the ability to speak but being able to have your say is a basic human right. A new campaign has been launched to encourage all of us to find out what we can do to support those who use ‘alternative and augmentative communication’ (AAC). AAC can include various methods that can support or get around problems that an individual might have with speaking or understanding information. These… read more »

East Ayrshire Council’s personal care charging u-turn

East Ayrshire Council has finally agreed to amend its grossly unfair personal care charging policy for under 65s who are terminally ill. Andy Masterton, who has MND, and was featured in our Personal Care Charging Campaign and BBC Scotland coverage of the campaign, has now had his care costs waived by East Ayrshire. We launched our Personal Care Charging Campaign at the start of MND Awareness Week in June. We… read more »

Gordon Aikman’s 5-point Fightback!

Gordon Aikman launches his 5-point fightback website, today.  Read all about it and get involved. During MND Awareness Week in June, Gordon, who was recently diagnosed with MND at the age of just 29, shared his moving and inspirational personal story with the press.  Gordon’s story was soon picked up on Twitter and retweeted by a wide range of influential people including the First Minister, Alex Salmond, Ed Miliband… read more »

40 MSPs attend MND Scotland Parliamentary Reception

On Wednesday evening, in the middle of MND Awareness Week, 40 MSPs attended MND Scotland’s Parliamentary Reception to speak to our 90 guests and hear about issues important to them. Our guests were predominantly people with MND, their families and friends, and supporters of the charity. 40 MSPs is a really high turnout for an event like this and we welcomed the opportunity to raise awareness of MND, MND Scotland… read more »

MND Awareness Parliamentary Reception 2014

MND Scotland’s Awareness Week Reception takes place at the Scottish Parliament tonight. Christina McKelvie MSP is sponsoring the event and Public Health Minister, Michael Matheson MSP, is our guest speaker. Over 90 guests will be hoping to speak to their MSPs about issues that matter to them. MND Scotland will highlight a number of issues including our Personal Care Charging Campaign which was positively responded to in Parliament yesterday.

MND Scotland Personal Care Charging Campaign

Background Personal care, provided by local authorities for people who need it at home, can include help with washing, feeding, dressing, toileting and getting in and out of bed. Since 2002, people over 65 years in Scotland have received free personal care. People under 65 years, who require personal care, are financially assessed by their local authorities to ascertain whether or not they should make a contribution. What’s the problem?… read more »

Scottish Parliament Reception Marking MND Awareness Week 2014

MND Scotland’s 2014 Parliamentary reception, marking MND Awareness Week, will take place in the Garden Lobby of the Scottish Parliament on the evening of Wednesday 18th June.  Christina McKelvie MSP, who lost her father to MND, will again host the event and our guest speaker is Minister for Public Health, Michael Matheson MSP. The reception will provide an opportunity to raise awareness of MND, the issues those with the illness… read more »

MSPs seek views on Assisted Suicide (Scotland) Bill

  The Scottish Parliament’s Health and Sport Committee is seeking views on the Assisted Suicide (Scotland) Bill.  The Committee states that the Bill would provide a means for certain people who are approaching the end of their lives to seek assistance to end their lives at a time of their choosing.  If you would like to respond to the Committee’s ‘call for written evidence’, you can access the consultation here. … read more »

Ministerial Statement on NHS Continuing Healthcare Review

  Following the publication of the Independent Review of NHS Continuing Healthcare in Scotland on Friday 2nd May, MND Scotland was greatly concerned to read the recommendation that this package of care for people with complex health care needs should be replaced with a system which would only meet the care costs of people in hospital. MND Scotland was pleased to hear Cabinet Secretary for Health and Wellbeing, Alex Neil… read more »

MND Scotland initial response to NHS Continuing Healthcare review

  Last year, Cabinet Secretary for Health and Wellbeing, Alex Neil MSP, set up an independent review into NHS Continuing Healthcare in Scotland, following claims that people who should have been receiving it, were not.  NHS Continuing Healthcare is a package of health care for people with complex health care needs.  It allows them to receive this care outside the hospital setting and is fully funded by the NHS.  However,… read more »

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