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Policy and Campaigns

Unacceptable PIP benefits delays

  Personal Independence Payment delays Decisions ‘can take about 21 to 26 weeks’ says DWP The length of time disabled people are having to wait to find out if they are eligible for Personal Independence Payment (PIP) is unacceptable, says the Work and Pensions Committee. The majority of people applying for PIP undergo a face-to-face assessment to determine eligibility, which is carried out by private contractors. But some claims are… read more »

Would you like to give your views on new carers legislation?

Carers’ Legislation: Online Questionnaire Do you, or have you recently (in the last 2 years), provide/d care for a loved one with MND?  If so, the Scottish Government is consulting on new carers’ legislation and would like to hear your views. If you would like to get involved, we would really appreciate you completing MND Scotland’s questionnaire by Friday 11th April. 

MSPs want to hear from you!

  MND Scotland responded to the Scottish Parliament Welfare Reform Committee’s ‘Your Say’ consultation during the summer. The Committee’s Convener, Michael McMahon MSP now wants to hear from you, as outlined in his letter below:   Letter from  Michael McMahon MSP,  Scottish Parliament Welfare Reform Committee Convener     Over the last year we have heard the stories of people from Glasgow, Annan, Kirkcaldy, Dunoon, Stirling, Coatbridge, Hamilton, Dundee, Edinburgh, Biggar…… read more »

Benefit Reforms: The personal impact

Motor Neurone Disease and Welfare Reform A diagnosis of MND is a devastating blow for a family. The last thing they expect is to be put through the mill of DWP assessment. Unfortunately, as a result of the UK Government’s welfare reform, this is exactly what is happening to many people with MND and their families.    Prior to welfare reform, people with MND were exempt from assessment for Incapacity Benefit… read more »

More welfare reform campaign press coverage

MND Scotland’s welfare reform campaign has again received some great recent press coverage.  On hearing Prime Minister, David Cameron, state last week that anyone who needs to have a carer sleeping in another bedroom is exempt from the spare room subsidy (or ‘ bedroom tax’), Christina McKelvie MSP immediately wrote to Mr Cameron asking him to clarify.  She also contacted the press about the matter highlighting our welfare reform campaign… read more »

MND Scotland parliamentary reception

On 12th June, MND Scotland held a parliamentary reception in the Garden Lobby of the Scottish Parliament, sponsored by Christina McKelvie MSP. Cabinet Secretary for Health and Wellbeing, Alex Neil MSP, was guest speaker.  Seventy people affected by MND and twelve MSPs attended the event. MND Scotland highlighted its welfare reform campaign ‘Time to benefit people with MND’ and guests viewed STV footage of the campaign. Frank Taylor, who has MND, was… read more »

Call for MSPs to back MND welfare campaign

  SNP MSP Christina McKelvie called on the Scottish Parliament to lend its voice to the MND Scotland welfare reform campaign Time to benefit people with MND during her member’s debate on 11 June 2013. Ms McKelvie, whose father had Motor Neurone Disease or MND, highlighted the impact the “insidious welfare reform” was having on those with the disease. MND is the name for a rare condition in which parts… read more »

MND Scotland launches welfare reform campaign

MND Scotland has launched a campaign directed at the UK coalition government highlighting the terrible impact of welfare reform on people with Motor Neurone Disease (MND).  We call on the DWP and UK Government to address a number of specific issues that have very serious consequences for people with MND. You can support the campaign by contacting your local MSP and MP with your own opinion via our website… We call… read more »

Neurological Alliance Parliament Event Success

The Neurological Alliance of Scotland held an event at the Scottish Parliament last night which was a great success. 16 MSPs attended, including two government ministers, and there was good cross party support.  Those with neurological conditions taking part in the event, including Jim Grant (who has MND) and his wife Janet, had the opportunity to discuss issues relevant to them with individual MSPs.  MND Scotland is a member of… read more »

Join our Campaign Network!

Are you interested in being involved in our campaigning work?  Join our Campaign Network and help us ensure politicians, journalists, health boards, and the public know more about MND, DLA!  Our Head of Policy and Campaigns, Susan Webster,  is currently working on a campaign about the changes to welfare benefits including Employment and Support Allowance, DLA and housing benefit (or the new ‘bedroom tax’).  Are you affected by any of… read more »

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