MND Scotland has launched a campaign directed at the UK coalition government highlighting the terrible impact of welfare reform on people with Motor Neurone Disease (MND).  We call on the DWP and UK Government to address a number of specific issues that have very serious consequences for people with MND. You can support the campaign by contacting your local MSP and MP with your own opinion via our website… We call… read more »

The Neurological Alliance of Scotland held an event at the Scottish Parliament last night which was a great success. 16 MSPs attended, including two government ministers, and there was good cross party support.  Those with neurological conditions taking part in the event, including Jim Grant (who has MND) and his wife Janet, had the opportunity to discuss issues relevant to them with individual MSPs.  MND Scotland is a member of… read more »

Are you interested in being involved in our campaigning work?  Join our Campaign Network and help us ensure politicians, journalists, health boards, and the public know more about MND, DLA!  Our Head of Policy and Campaigns, Susan Webster,  is currently working on a campaign about the changes to welfare benefits including Employment and Support Allowance, DLA and housing benefit (or the new ‘bedroom tax’).  Are you affected by any of… read more »

                                  Rt Hon Iain Duncan Smith, MP Secretary of State Department for Work and Pensions Caxton House Tothill Street London SW1H 9NA                                                                        22nd February 2013 Dear Mr Duncan Smith, We were very pleased to read yesterday that you have instructed officials to look again at how the under-occupation penalty for social housing tenants will affect couples who are unable to share a room due to one partner having… read more »

The Scottish Government’s Living and Dying Well documents (2008 and 2011) set out how commitments to deliver high quality palliative care in Scotland would be achieved. Healthcare Improvement Scotland subsequently produced draft quality indicators on palliative and end of life care which went out for consultation at the end of 2012. Read MND Scotland’s response here.

Susan Webster has started as our Head of Policy and Campaigns, a new role at MND Scotland. Susan has worked with Action for M.E., a UK charity, for the last 6 years as their Scotland based Co-ordinator. Her responsibilities included supporting the Cross Party Group on M.E. at the Scottish Parliament, working with MSPs, health boards and the Scottish Government to increase awareness of M.E. and influence development of much… read more »