Skip to Content

Policy and Campaigns

First Minister Announces a New Statutory Right to Communications Equipment

MND Scotland was delighted to hear the First Minister announce yesterday in Parliament that the Scottish Government will introduce a statutory right to communications equipment. During her outline of the First Programme for Government 2015/16, the First Minister stated “Access to voice equipment is vital to anyone who is at risk of losing their voice as a result of conditions like MND.  Gordon Aikman and MND Scotland have been campaigning… read more »

Christina McKelvie MSP stays silent for MND

  Yesterday morning (Thursday 18th) Christina McKelvie, MSP for Hamilton, Larkhall and Stonehouse, took on Silence Speaks – our Awareness Week fundraising activity. Christina did her constituent briefing using only notes and gestures to communicate. Being a Politician and used to being outspoken Christina said: “This was rather difficult and frustrating as I wanted to ask so many questions but had to stick to writing notes and using gestures. “I… read more »

‘Let me speak’

MND Scotland Communications Equipment Campaign   People with MND can lose the ability to walk, eat, speak and breathe unaided.  80 – 95% will have their speech affected.  They may struggle to speak clearly or lose their ability to speak altogether. For many people with MND, losing their ability to speak is the very worst symptom of the illness. Those affected need to find alternative ways of communicating with loved ones… read more »

First Minister’s Announcement on MND Nurses

MND Scotland is delighted to hear that First Minister, Nicola Sturgeon MSP, has committed to doubling the number of MND nurses in Scotland and ensuring that they are paid for by the NHS. Doubling the number of nurses will make an enormous difference to people with MND across Scotland. It means that patients will have greater contact with the nurses as they won’t have such huge geographical areas to cover. Currently… read more »

Neurology Patient Experience Survey

The European Federation of Neurological Associations, EFNA, is launching a European survey on the impact of living with a brain disorder. The aim of the survey is to: Find out how neurological disorders impact on the home, work/educational and social life of those affected. Explore the association with related conditions/syndromes e.g. mental wellbeing, chronic pain, bladder and bowel problems etc. Assess the satisfaction rates with treatment and management. Data generated will… read more »

Care Charging highlighted in First Minister speech

Following her meeting this week with Gordon Aikman and our CEO, Craig Stockton, new First Minister, Nicola Sturgeon MSP, highlighted personal care charging for terminally ill people in her first legislative programme statement. The First Minister stated “I want to make clear today my expectation that no terminally ill person in the last six months of life should be charged for personal care.” “I can also advise Parliament that if new… read more »

First Minister Promises to Review MND Care

Gordon Aikman and our CEO, Craig Stockton, met with First Minister, Nicola Sturgeon, yesterday to discuss care provision for people with MND. Gordon and Craig highlighted: the postcode lottery of personal care charging for terminally ill people in Scotland, first highlighted in our campaign in June. that most of the funding for Scotland’s NHS employed MND specialist nurses comes from MND Scotland charitable donations; and, that more MND specialist nurses… read more »

Gordon Aikman secures First Minister meeting

Last Thursday evening, Gordon Aikman won the Judges’ Award at the Herald’s prestigious Scottish Politician of the Year Awards 2014, for his Gordon’s Fightback campaign. During his inspiring acceptance speech, Gordon highlighted that there are only 7 MND specialist nurses in Scotland and how funding for their posts relies on charitable donations to MND Scotland. Gordon finished his speech by asking First Minister, Nicola Sturgeon, for her support. Today, Gordon… read more »

Now Hear Me: It’s My Right To Speak

Not everyone has the ability to speak but being able to have your say is a basic human right. A new campaign has been launched to encourage all of us to find out what we can do to support those who use ‘alternative and augmentative communication’ (AAC). AAC can include various methods that can support or get around problems that an individual might have with speaking or understanding information. These… read more »

East Ayrshire Council’s personal care charging u-turn

East Ayrshire Council has finally agreed to amend its grossly unfair personal care charging policy for under 65s who are terminally ill. Andy Masterton, who has MND, and was featured in our Personal Care Charging Campaign and BBC Scotland coverage of the campaign, has now had his care costs waived by East Ayrshire. We launched our Personal Care Charging Campaign at the start of MND Awareness Week in June. We… read more »

RSS feed for category Policy and Campaigns