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Personal Stories

Obituary – Bryan Carroll

  Bryan was educated at Our Lady’s High School in Motherwell, which he left in 1991 to study Biochemistry and Pharmacology at Strathclyde University. After graduating in 1996, he went to work for the Scottish Catholic Observer. In 1998 his interest in communications developed and he moved to Assistant Editor with In Position Media. In 1999 he moved to Ademco Microtech as a Technical Author. Suffering from epilepsy, he wanted… read more »

Applause for two young carers

  The RBS Real Heroes Award Ceremony is an annual celebration held in recognition of the work of some of Scotland’s most deserving and inspiring individuals. It was an event attended by high profile Scottish celebrities, award nominees and their family members.   Fraser Anderson and Scott Wilson were nominated for the ‘RBS Young Carer of the Year’ by Fraser’s dad, John, who has MND. Their story was broadcast on… read more »

Rugby Legend Joost van der Westhuizen in MND research drive

Joost van der Westhuizen, 42, former South African rugby star was diagnosed with motor neurone disease in 2011. He is to team up with Edinburgh university researchers to help tackle the disorder.  The former scrum-half was part of the World Cup-winning Springboks squad of 1995, he said: “I realise every day could be my last. It’s been a rollercoaster from day one and I know I’m on a deathbed from now on. I’ve… read more »

‘I am Breathing’ at the GFT and CCA in Glasgow

At thirty-four, shortly after the birth of his son, Neil Platt found himself with only months to live as a result of Motor Neurone disease. Neil maintains a blog and captures for posterity the intense and sometimes irreverent thoughts that keep him going as his body fails. His loving wife Louise provides him with invaluable support, and the film derives considerable power from their desire to record a loving family… read more »

Vote for STV ‘Young Carers of the Year’

“They have put their lives on hold to look after me. It would be nice to see them being recognised for the effort they have put in over the last year before my time comes…” John Anderson   Fraser Anderson and Scott Wilson will appear on STV’s ‘Real Heroes’ programme on Friday 4th Oct at 8pm. Fraser’s Dad, John, has had MND for 18 months and he has voted his son… read more »

‘I am Breathing’ and Q&A – Hippodrome, Bo’ness, 22nd Aug

With his posts forming the film’s narration, ‘I Am Breathing’ listens to Neil Platt in the last months of his life and tells the story of his life from his memories and impressions of love, friends and motorbike rides. A beautiful, intimate and occasionally humorous film revealing what makes us human through the story of an ordinary yet remarkable man. The screening will be introduced by the directors Emma Davie and… read more »

Benefit Reforms: The personal impact

Motor Neurone Disease and Welfare Reform A diagnosis of MND is a devastating blow for a family. The last thing they expect is to be put through the mill of DWP assessment. Unfortunately, as a result of the UK Government’s welfare reform, this is exactly what is happening to many people with MND and their families.    Prior to welfare reform, people with MND were exempt from assessment for Incapacity Benefit… read more »

Support Group Meetings on the Horizon

The dates for many of our next Support Group meeings are very near. Check out our Support Group page to register for regular updates and if you wish to come along to any of the forthcoming meetings please feel free to let dawn [dot] hamilton [at] mndscotland [dot] org [dot] uk know and recieve more info. Support Groups are proving increasingly popular and they are an informal opportunity to make… read more »

Song and Novel to Help Raise Money for MND Scotland

The release of the single, ‘Bound Away my Lassie’, coincides with the publication of George Korankye’s novel ‘Away the Lassie’. Sales of the song and novel will go toward the fundraising effort of Julie Finlayson, aged 22, who is undertaking a dog-sled challenge in Norway in April 2013 to raise money for MND Scotland. Julie has a Husky Challenge Just Giving page if you wish to make a direct donation.   Find out more about George Korankye’s novel,… read more »

Would you enjoy a Support Group?

Arlene Lawrence is a member of the Tayside Support Group. She was originally very reluctant to go along when her husband was first invited by MND Scotland: “the thought of attending a group made me really nervous, I didn’t know what to expect, but I went along because Gordon was interested in what it would be like.” Arlene has since found the group meetings to be very positive: “I now… read more »

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