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Personal Stories

Father of youngest MND sufferer pens open letter

Robert Lintott’s daughter, Lucy Lintott (22), was diagnosed with the terminal illness, Motor Neurone Disease (MND), almost three years ago, when she was just 19 years old. Opening up publicly for the first time he wrote this letter to her: Tuesday, November 19, 2013 is the day I will never forget. It changed our family’s life forever. No father should have to write a letter like this to his daughter,… read more »

How My Dad Fought Back against Motor Neurone Disease

By Joyce McQuilken “My father John McQuilken was diagnosed with MND in July 2007, just a month before his 80th birthday, after a few years of increasing leg weakness, falls and broken bones. He died on 26th January 2012. “With the increased awareness of MND and successes of MND Scotland and their supporters in recent years, I wanted to contribute by also sharing our story. The doubling of MND nurses,… read more »

Musings of a middle aged woman and MND

Susan Boag (52), from Forres, was diagnosed with MND in November 2015. Susan has the bulbar form of MND, which means your ability to speak is affected first. Susan started a blog in September 2014 to share her “musings of a middle aged woman”. The focus of her blog remains the same but has also changed since she was diagnosed. She said, “You may think that the fact I have… read more »

Perth man shares experience of MND in blog

Richard Selley (62), from Perth, was diagnosed with MND in March 2015, but first experienced symptoms in 2012. The retired teacher is now writing a blog about the journey of his diagnosis and about his experience of living with the disease. He said, “I have been, and remain, determined to be as positive as I can be, but I have also tried to be realistic about the challenges that I… read more »

Ali’s West Highland Way Challenge for MND

Ali Berry (45) from East Kilbride has had a devastating experience of Motor Neurone Disease (MND), with eight members of his family passing away from the debilitating illness. Ali said, “This disease has been responsible for the deaths of my dad, sister, gran, an aunt, two uncles and two cousins. My cousin Emma, who was only 17 years old, caught us all really off guard. She was so young. Her… read more »

Speechless MND sufferer finds a new voice

A Bearsden woman, who lost her speech after she was diagnosed with the debilitating motor neurone disease (MND), says that new technology has been a real lifeline. Former English teacher, Liz Ogg, who has 2 daughters and 3 granddaughters, is writing an inspiring and thought-provoking blog to help others in the same difficult situation. Liz first experienced problems with her speech three years ago and within a year she lost… read more »

Gordie’s MND Blog

  Gordon set up his blog to give readers the opportunity to understand what it is like being diagnosed and living with MND – from his own personal experience. Gordon talks about his diagnosis in 2005 and how he began noticing symptoms in 2003. From there he charts, in detail, living with MND from year to year. Read Gordie’s MND Blog here. 

Lucy’s Fight

  In May, Lucy Lintott jointly won the Fundraising Hero and Our Hero awards at the Daily Record Our Heroes Awards 2015, alongside Gordon Aikman. Both are fundraising for MND Scotland and the reason for this is that both of them have MND. Lucy Lintott is the youngest person in Scotland to be diagnosed with MND. Lucy was just 19 when she was diagnosed but decided she was not going to let… read more »

Mark Craig’s Story

  MND Scotland supporter and MND patient Mark Craig’s personal story has been featured in the Evening Times today (21st April 2015). Mark lives with children Ben and nine-year-old Jessica and his wife Charlene, 34, in a specially adapted home in Castlemilk. The family’s world changed forever when Mark was told the news. Mark said: “I had a twitch in my arm. I went to my GP and everyone thought it… read more »

Living with Motor Neurone Disease by Robyn Ovens

  Robyn wrote the following Essay for her Higher English, which describes, in he own words, how it felt when her Uncle was diagnosed with MND. “Monday 4th October 2010 is a day I will never forget. My Uncle was diagnosed with motor neurone disease and my life was turned upside down. The disease is a fast-acting, wasting condition, in more ways than one. The motor neurones are nerves from… read more »

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