Our annual Fun Run at Strathclyde Park will take place on Saturday 10th May 2014 at 11am!
Join hundreds of other runners, walkers and joggers taking part in our biggest event of the year to raise money to fight Motor Neurone Disease.
Entry is just £10 (£12 on the day), and it’s free for MND Scotland members, those with MND and under 16s.
We place the emphasis very much on this being a fun event – great for groups of friends, colleagues and families. We encourage fancy dress and you can also bring your dog! There’ll be refreshments, entertainment, home baking and face painting… and hopefully a huge amount of money raised to fight MND.
To register click here: http://www.mndscotland.org.uk/fundraising/do-something/running-events/fun-run-2014-entry-form/
Please contact the Fundraising Team if you have any questions!
See last year’s photos here: http://www.flickr.com/photos/mndscotland/sets/72157633547255735/
See video from last year here: http://www.youtube.com/watch?v=IgOYmOJKU5w&feature=share]]>
The RBS Real Heroes Award Ceremony is an annual celebration held in recognition of the work of some of Scotland’s most deserving and inspiring individuals. It was an event attended by high profile Scottish celebrities, award nominees and their family members.
Fraser Anderson and Scott Wilson were nominated for the ‘RBS Young Carer of the Year’ by Fraser’s dad, John, who has MND. Their story was broadcast on STV allowing the general public to decide on who they thought was most deserving of the award before voting online. We also highlighted it on our website to let our Facebook fans and Twitter followers see the two boys caring for John. Their commitment obviously made a big impression upon people. Not only are Fraser and Scott now both proud to be the RBS Young Carer of the Year, they were also hailed overall award winners of the RBS Real Hero of the Year.
John Anderson passionately believes the boys are worthy winners saying, “they have put their lives on hold to look after me. I’m so proud to see their effort being recognised.” John, from Kirkcaldy, was diagnosed with MND in May 2012. He can no longer walk or talk and feels weaker by the day. Fraser was studying at college when he decided the time had come for him to move in with his dad to provide full time care. Fraser’s best friend, Scott, wasn’t working at the time and would often pop in to help out. This became a more regular occurrence and has now reached the point where he cares for John three days a week whilst Fraser takes responsibility for the other four.
Scotland’s real heroes also hit 10 Downing Street in Pride of Fife tartan at a star studded reception to mark St Andrews Day. Fraser said: “It was an unforgettable experience. Dad is really chuffed for us and would have loved to have been there too if he were well enough.” Life for Fraser and Scott consists of feeding, dressing, washing, and medicating John. They converted a spare room and got a wet-room installed. They take John out in his wheelchair, mow the lawn, and carry out regular chores at home. Fraser and Scott may look like your average 19 and 20 year old lads, but nothing could be further from the truth.]]>
Why beard of red?
Are you off your head?
With tree-fall, brain-bash?
End means to make cash!
Not mind a jot
To get cash pile,
Look like a fool,
Red beard, big smile!
To help humankind
All sisters and brothers,
In seeking a cure for
Our fathers and mothers!
I hope great minds
Discover a cure one day,
So no more loved ones,
Are cruelly taken away!
Think of the children
Who are left behind,
With heartfelt charity,
An answer may find!
One gift’s each day
To family we love,
Watched with pride,
From heaven above!
For MND good cause,
All monies will go,
With each kind gesture,
Seed of knowledge shall grow!
One small step forward,
At times, a pace or two back,
Until one day ‘Eureka’!
New MND sunrise from dark!
Will display whiskers of red
‘Til November month ends,
29 day window, count down,
For piggy-bank raid my friends!
So cheers to all,
And many thanks,
Cash from down sofa,
Nest-egg and banks!
But worry not, if no
Note or coin to spare,
Can still play a part,
With pause – thought and prayer.
For family hopes and dreams to be realised,
That a cure be found one day,
In memory of all absent loved ones,
Who have sadly now passed away.
No agony pro-long, suffer at end,
A wish for no family to grieve,
If a proud and lasting legacy,
We all could strive to leave.
We are again able to offer small grants towards the cost of a holiday or other ‘time out’. This is funded by the Scottish Government through the Short Breaks Fund, run by Shared Care Scotland.
The purpose of the grants is to support carers and people with MND by giving them the chance to enjoy quality time outside their usual routine. We particularly want to give carers time to unwind and recharge, to help them to cope with their caring role. You can use the grant to spend time together or for one person to have a break, as long as you will both feel the benefit.
You can read more about the grants, and apply online, here: http://www.mndscotland.org.uk/services/small-grants/time-to-live-grants/]]>
We know that when someone close to you is affected by MND, many people just want to Do Something.
We know that many people fundraise for MND Scotland because sometimes it’s the only thing they can do. We know it’s not easy, but that’s why every MND Scotland fundraiser is doing something amazing – fighting Motor Neurone Disease.
So, in 2014, we’re asking if you could help to make a real difference and Do Something Sporty, Do Something Scary, Do Something Civilised, or Do Something Scottish….?
Enter the Loch Ness Marathon, the River Ness 10k, the Strathclyde or Holyrood Park Fun Run! Take part in Pedal for Scotland, or the Three Peaks Challenge! Do Something Sporty >>
We know that seeing someone close to you suffer from MND can be frightening. After that, nothing is as scary as what you’ve already faced. Like walking over fire, doing a skydive, or an abseil. Do Something Scary >>
We know that just because you don’t want to run a marathon or jump from a bridge, it doesn’t mean that you don’t want to help. So why not Do Something Civilised? Like a coffee morning, or a dress-down (or up!) day in your workplace? Do Something Civilised >>
The world will be looking at Scotland in 2014: for the Commonwealth Games, the Ryder Cup, and the Independence referendum. We think it’s a great opportunity to celebrate everything that’s great about Scotland, and to raise money to fight MND. Do Something Scottish >>
We’ll be there to help, from when you sign up for the event until (and after) you’ve handed in your sponsorship money.
We’ll help you set up an online sponsorship page; we’ll provide tshirts, information about MND and the work that MND Scotland does; and we’ll be here to advise if you need us.
If none of our events appeal, then you can always Do Something Else… just get in contact! fundraising [at] mndscotland [dot] org [dot] uk
Find out how you can Do Something to Fight MND in 2014 >>
The former scrum-half was part of the World Cup-winning Springboks squad of 1995, he said: “I realise every day could be my last. It’s been a rollercoaster from day one and I know I’m on a deathbed from now on. I’ve had my highs and I have had my lows, but no more. I’m a firm believer that there’s a bigger purpose in my life and I am very positive, very happy.”
Visit the BBC website to read the full article and watch the interview featuring Joost and MND Scotland patron Scott Hastings
For the first time the Alliance has made this event easily accessible for the general public – you can watch a live video stream of the ‘ASK THE EXPERTS’ session from the comfort of your armchair, on the train, at work etc… The professionals who have spoken today and yesterday will be answering questions and giving greater detail about the subjects they have presented.
To view the ’ASK THE EXPERTS’ session live from 1.30pm click here… (no longer available)
A full copy of the Alliance programme can viewed via their website as a pdf…]]>
Carers look after family, partners or friends in need of help because they are disabled, frail or have an illness like motor neurone disease. Carers often don’t realise there is support available to them.
MND Scotland feels it’s important that there is an increase in the uptake of benefits – it’s estimated that millions of pounds entitled to carers’ via benefits aren’t claimed each year. Every year, more than 2 million people become carers but many don’t identify themselves as carers and miss out on support. Even those who have been caring for years sometimes aren’t aware of their entitlements. Carers often do not realise practical support is available, like replacement care to give the carer time off, help with lifting and bathing, equipment and home adaptations that can be vital in protecting carers’ health.
MND Scotland services for carers
MND Scotland has many resources that are helpful for carers. These include a team of specialist nurses, specialist equipment, counselling, information, benefits and welfare advice, befriending, family information evenings, and local support groups. Find out more about these and others on the Our Services section of our website…
We also have a page on the website with links to helpful carers organisations…]]>
MND Scotland responded to the Scottish Parliament Welfare Reform Committee’s ‘Your Say’ consultation during the summer. The Committee’s Convener, Michael McMahon MSP now wants to hear from you, as outlined in his letter below:
Over the last year we have heard the stories of people from Glasgow, Annan, Kirkcaldy, Dunoon, Stirling, Coatbridge, Hamilton, Dundee, Edinburgh, Biggar… the list goes on.
Some of these personal stories are extraordinary, moving, shocking and often painful. Some of you may remember the evidence our blind witness, Henry Sherlock, who was asked to raise an empty cardboard box in his Work Capability Assessment, but not take it anywhere. He couldn’t, he would need to be holding his white stick in one hand.
More recently we heard from Scott Wilson, who suffers from Parkinson’s and is separated from his partner, requiring an ‘extra’ room to look after his disabled son for part of the week. He is being charged the ‘bedroom tax’ and is threatened with having to move.
I bow my head to the courage of these men and women who have come before us and shared the sometimes intimate details of their lives with the hope that this will help to make things better for others. I also firmly believe that this process of exposing the impacts of welfare reform on people’s lives every-day is slowly having an effect on the way people feel about this process.
I am happy to say that my Committee – most of them – share this view and we will be continuing with the Your Say initiative. We would like to run an evidence session – late this year, or early next – looking at the impact of welfare reform on those with long-term conditions, generally health conditions that last a year or longer, impact on a person’s life, and may require ongoing care and support. Many of those who have given evidence to us have had long-term conditions, but we would like to focus a session on this issue.
We have an additional reason for wanting to do this. Many people are saying to us that one of the emerging issues with welfare reform is the cumulative impact of the different measures. That people who are losing income through Work Capability Assessments are also being hit by the ‘bedroom tax’, and may well struggle with PIP assessments etc. etc.
This was an issue that was flagged up to us by Professor Steve Fothergill of Sheffield-Hallam University in the research we commissioned from him on the impact of welfare reform on Scotland and we would like to examine how this is turning out in practice.
So we would like to hear from those with, or caring for those with, long-term conditions about how welfare reform – any aspect of it – is impacting on them. The day-to-day reality of life as well as hopes and fears. And we would particularly like to hear from those who have been affected, or think they will be, by several aspects of it. However, even if you have only been affected by one measure, we would still like to hear from you.
Our Committee is here to help you find your voice in the Scottish Parliament. Send us your experiences and we will do the rest.
Michael McMahon MSP, Welfare Reform Committee Convener]]>
There’ll be an auction and raffle as well as dinner, drinks and dancing, to the fabulous Big Verne & The Shootahs and DJ Barry Shafar. Tickets are £60 each or £600 for a table of 10. We hope to see you there!
More information and online booking available here: http://www.mndscotland.org.uk/event/the-cornflower-ball/]]>