We provide a wide range of information about Motor Neurone Disease (MND) for people affected by MND and health care providers.
We are always looking for people to feedback on our publications – contact us if you’re interested in helping out with this.
A diagnosis of MND can raise many questions. Here we answer the questions most frequently asked by people recently diagnosed with MND, their families, friends and carers.
Inventive ways that people get around problems MND can cause from. One woman, who used to be a keen skater, used rollerblades to get around – but had to give them up when she turned 70! We realise rollerblades aren’t for everyone, but some of the tips in this section might suit you.
Our information officer is happy to deal with any general enquiries regarding motor neurone disease. We also have a library of books, journals, conference proceedings, videos and DVDs.
Find out more about our library and information service in 'Our services'.
We have more than 60 different factsheets covering all aspects of MND from coping with disability to caring. Not everyone feels ready to read everything at once, so we have grouped the factsheets into sections that you can read when you are ready.
One of the things that really saddens us is how frequently people try to exploit others with conditions like MND. So, here we give links to reliable sources of information and services.
Our education officer organises regular information meetings and demonstrations for people with MND and their carers, both family and professionals. No charge is made for these sessions.
Find out more about our education service in 'Our services'.
