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Factsheets and other resources

We realise that everyone is different and while some people want to read everything there is to read about MND others want to take it one day at a time. For this reason we have presented our factsheets in the following groups. That way people do not have to read the titles of some of the heavier going issues until they feel ready for them.

MND Scotland factsheets

The factsheets are presented as PDFs that can be downloaded and printed.

This page contains a complete listing of all the factsheets we current have available (factsheet number in brackets after the title).

  1. Introductory

This group contains information about what causes MND and a little about the known genetics of MND.

2. Coping with MND

A small collection of factsheets offering practical tools and advice for keeping track of appointments, coping with MND and talking to small children about MND.

4. Caring and Carer

The implications of being a carer, advice on caring at home and sources of information about palliative care.

General advice and hints on motoring, motability, holidays, travel insurance and long distance travel.

Supplementary Files

The supplementary files contained here have the contact details for Scottish District Councils, Sheriff Courts and some suggestions for sample powers of attorney

Other Resources

So what is MND anyway?  A guide for younger people (teens) as to what MND is.

Professional Resources

The following resources are intended for the use of professionals dealing with people affected by MND.

Mutidisciplinary Care Plan, contains suggested resources and interventions for different stages of MND.

A Problem Solving Approach 2012, is intended for medical practitioners and AHPs dealing with MND.

Amyotrophic Lateral Sclerosis, edited by Martin H Maurer, is an open access book intended for those with a more scientific interest in MND, 718 pages, published January 2012.

Advanced Understanding of Neurodegenerative Disease, edited by Raymond Chuen-Chung Chang, is an open access book intended for those with a more scientific interest in neurodegenerative diseases, 442 pages, published December 2011. Chapter ten on FTLD and the last chapter on ALS are of particular interest.

Neurology Research International, an open access journal. Special edition on Amyotrophic Lateral Sclerosis, 2012.

Last updated on January 14, 2016