MND Scotland FactsheetsWe realise that everyone is different and while some people want to read everything there is to read about MND others want to take it one day at a time. For this reason we have presented our factsheets in the following groups. That way people do not have to read the titles of some of the heavier going issues until they feel ready for them.

The factsheets are presented as PDFs that can be downloaded and printed.

Introductory

This group contains information about what causes MND and a little about the known genetics of MND.

Coping with MND

A small collection of factsheets offering practical tools and advice for keeping track of appointments, coping with MND and talking to small children about MND.

Information and Support

Where to go to find sources of support, more information about MND, the services offered by MND Scotland, recommended reading and a directory of useful organisations.

Caring and Carers

The implications of being a carer, advice on caring at home and sources of information about palliative care.

Money Issues

A brief overview and description of current benefits you might be entitled to, a tool to help you manage your finances and some suggestions regarding financial and legal issues that might be relevant before you stop work..

Managing Symptoms

Managing MND in general and why Riluzole is prescribed.

Physical Disability

Suggestions on equipment, techniques, exercises and clothing to make life that little bit easier.

Research, Drugs and Trials

What’s going on in the research front, how clinical trials are conducted and some information about complementary therapies.

Genetics

Introducing genetics and disease inheritance in the context of MND.

Breathing and Bulbar Symptoms

Background information to the advantages and disadvantages of various interventions such as feeding tubes and non-invasive ventilation

Motoring, holidays & Travel

General advice and hints on motoring, motability, holidays, travel insurance and long distance travel.

Death, dying and bereavement

This collection may be helpful both for people considering powers of attorney, advance directives, leaving a legacy or medical bequest as well as those who need to deal with bereavement and other arrangements.

Supplementary Files

The supplementary files contained here have the contact details for Scottish District Councils, Sheriff Courts and some suggestions for sample powers of attorney.

 

For those who want to see the titles of all the available factsheets here is also a page here with a complete list of all current factsheets.

 

Other Resources

So what is MND anyway?  A guide for younger people (teens) as to what MND is.

 

Professional Resources

The following resources are intended for the use of professionals dealing with people affected by MND.

Mutidisciplinary Care Plan, contains suggested resources and interventions for different stages of MND.

A Problem Solving Approach 2012, is intended for medical practitioners and AHPs dealing with MND.

Amyotrophic Lateral Sclerosis, edited by Martin H Maurer, is an open access book intended for those with a more scientific interest in MND, 718 pages, published January 2012.

Advanced Understanding of Neurodegenerative Disease, edited by Raymond Chuen-Chung Chang, is an open access book intended for those with a more scientific interest in neurodegenerative diseases, 442 pages, published December 2011. Chapter ten on FTLD and the last chapter on ALS are of particular interest.

Neurology Research International, an open access journal. Special edition on Amyotrophic Lateral Sclerosis, 2012.

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