Factsheets
Comprehensive Factsheets Collection
MND Scotland has prepared a range of factsheets for people affected by MND and those who look after them. These factsheets cover all aspects of the disease from diagnosis onwards and include topics which are often difficult to discuss. You may not feel ready to face certain issue yet, but the factsheets are there for when you are ready.
View the full list of all our Factsheets. Use this document to see the complete list of all our factsheets and on-line support materials available to download. Clicking on their titles will download pdf versions of the factsheets.
Introductory Factsheets
This group contain information about what causes MND and a little about the known genetics of MND.
Coping with MND
A small collection of factsheets offering practical tools and advice for keeping track of appointments, coping with MND and talking to small children about MND.
Information and Support
Where to go to find sources of support, more information about MND, the services offered by MND Scotland, recommended reading and a directory of useful organisations.
Caring and Carers
The implications of being a carer, advice on caring at home and sources of information about palliative care.
Money Issues
A brief overview and description of current benefits you might be entitled to, a tool to help you manage your finances and some suggestions regarding financial and legal issues that might be relevant before you stop work..
IManaging Symptoms
Managing MND in general, why Riluzole is prescribed and why Lithium used to be thought of as potentially beneficial.
Physical Disability
Suggestions on equipment, techniques, exercises and clothing to make life that little bit easier.
Research Drugs and Trials
What's going on in the research front, how clinical trials are conducted and some information about complementary therapies
Genetics
Introducing genetics and disease inheritance in the context of MND.
Breathing and Bulbar Symptoms
Background information to the advantages and disadvantages of various interventions such as feeding tubes, non-invasive ventilation plus p.
Motoring and Travel
General advice and hints on motoring, motability, holidays, travel insurance and long distance travel..
Advanced Planning and Bereavement Issues
This collection may be helpful both for people considering powers of attorney, advance directives, leaving a legacy or medical bequest as well as those who need to deal with bereavement and other arrangements.
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