MND Sites and Groups

There are hundreds of websites available on motor neurone disease. Be wary of the information available as anyone can put a site on the web and some can be positively misleading with hopes about miracle cures. The list below will guide you to sites with quality information.

Remember if you are searching the internet that motor neurone disease is also known as Amyotrophic Lateral Sclerosis (ALS) or Lou Gehrig's disease.

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Web Sites

The MND Association (for England, Wales, and Nothern Ireland)

ALS Society of Canada

The ALS Association (USA)

Muscular Dystrophy Association – ALS Division

Motor Neurone Disease Association of Australia

International Alliance of ALS/MND Associations

Support Organisations

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King's Motor Neurone Disease (MND) Care and Research Centre

Contact a Family

International Alliance of ALS/MND Associations

ALS March of Faces

Online Groups

There are many forums on the internet but here are two which may be useful:

build-uk.net

ALS Digest
An electronic discussion group (1998-2004) which connected people with ALS/MND, medical researchers, and others interested in the condition.  The archive can still be useful.

Updated Thursday 11 Sep 2008

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