MND Scotland, formerly the Scottish Motor Neurone Disease Association
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Medical information
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Neurology Sites
World Federation of Neurology ALS Page
MEDLINEplus plus interactive tutorial
Care and Research Centres
King’s Motor Neurone Disease (MND) Care & Research Centre, London
Clinical Trials and Research
Clinical Trials Summary from the NIH
search for “amyotrophic lateral sclerosis”
Muscular Dystrophy Association – ALS Division
*ALSTDI – ALS Therapy Development Institute
The Robert Packard Center for ALS Research at John Hopkins University, Baltimore
Drug Information
Aventis
Rilutek is the only drug available to people with MND.
Patient Experiences (video format on the web)
DIPEx (personal experience of health and illness) From the Living with Dying section
Patientslikeme www.patientslikeme.com
Only online treatment and outcome sharing community for ALS/MND.
