Why has diagnosis take so long?
MND is a condition where almost every clinical symptom is common to at least one other condition – such as multiple sclerosis, Parkinson’s disease, and some rare cancers of the brain and spinal cord, as well as a number of rare conditions causing compression or damage to the spinal cord. Since any particular pattern of symptoms may not exclude all of these conditions, investigations do not always lead to a confident and definite diagnosis.
With fewer and milder symptoms, observation may be required to see whether these symptoms worsen appreciably over time.
With such a serious diagnosis as MND, no stone should be unturned to exclude other conditions and this process can take time with some uncertainty for many months.
The diagnosis will be certain only when either additional symptoms appear or existing symptoms increase in severity.
Please consult with a medical professional for advice specific to your individual situation.
Frequently asked questions for people newly diagnosed with MND.
Publications, links and online resources are on our information page.
There are many avenues of research being explored to find a cure for MND.
Register to stay in touch through regular updates.
Click here to sign up.