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Coast to Coast Cycle Challenge

A Coast to Coast cycling challenge organised by staff from BP has raised over £1 million for good causes over its eight-year lifespan. The eighth Coast to Coast challenge, which took place from 20-22 May, was the organisers’ largest yet with a firm focus on reaching the £1 million target. Seventy current and former BP employees completed the 250-mile cycle, almost twice the amount who have taken part in previous years. The… read more »

National MND Care Team Meeting

On 7th January 2015, First Minister Nicola Sturgeon committed to doubling the number of MND Specialist Nurses in Scotland and to ensuring that they are paid for from public funds, instead of being 80% funded by MND Scotland. On Wednesday 18th May 2016 the first National Care Team meeting was held since these new positions were filled. This meeting also saw Judith Newton, formerly an MND Clinical Specialist, attend her… read more »

Scotland’s youngest MND sufferer receives Prime Minister’s ‘Points Of Light’ Award

Scotland’s youngest Motor Neurone Disease (MND) sufferer has been named a Point of Light by Prime Minister David Cameron after turning her terminal diagnosis into an opportunity to help others. Campaigner Lucy Lintott, 21 from Moray, was diagnosed with MND nearly three years ago. Although the average life expectancy of someone with MND, from diagnosis, is just fourteen months, Lucy decided to not allow her terminal illness to win and… read more »

Charity Partnership with Scotbreaks

Scotbreaks is an exciting new online company which just launched today and we are delighted to be their first charity partners. About Scotbreaks “It is the brainchild of an experienced and award-winning team of hoteliers, who dreamed of a website that offered only short breaks in Scotland in some of the finest hotels and B&Bs around the country, providing real value for money and celebrating all that Scotland has to offer.… read more »

Fun Run Fun!

Another year at the MND Scotland Fun Run at Strathclyde Park is over! And what a ball we had… The sun was splitting the sky as over 1,000 people flooded the park with MND Scotland t-shirts, blue wigs and a few unusual suspects; Superman, an elephant, a bear, a gaggle of pink ‘adult babies’ and a giant bunny! Props for the creativity. The registration desk was mobbed with over 200… read more »

International Symposium on ALS/MND 2016

This year’s International Symposium on ALS/MND will be held in Dublin from 7- 9 December. As in previous years there will be an ‘Ask the Experts’ session, where patients, carers and health professionals can ask a panel of experts about MND, research and other issues. This is organised by the International Alliance of ALS/MND Associations, in conjunction with the Irish Motor Nuerone Disease Association. The session will be held on the… read more »

Awareness Week 2016

20 – 26 June International MND Awareness Day takes place on 21st June. It gives people affected by MND and MND charities across the world an opportunity to raise awareness of the illness and highlight its impact on those affected. This year, as always, we will be doing everything we can to raise awareness and increase understanding of the illness, across Scotland. We know from recent surveys and speaking to… read more »

Scottish Charity Awards 2016

We are delighted to announce that TWO MND Scotland supporters are finalists in the 2016 Scottish Charity Awards. Gordon Aikman and Lucy Lintott, who both suffer from Motor Neurone Disease (MND) are in the running for the Charity Champion Award 2016. Organised by Scottish Council for Voluntary Organisations (SCVO), the Awards, which are free to enter, celebrate the life-changing work of charities, community groups and individuals dedicated to making Scotland… read more »

Ashlea reunited with Dad two weeks before passing

Ashlea Ford (26), from Edinburgh, is attempting to conquer her first 10km run almost 7 years to the day of her dad’s diagnosis of Motor Neurone Disease (MND). Ashlea was reunited with her biological father, Martin, after 14 years – just two weeks before he passed away from the illness. Martin Ulke was diagnosed with MND in May 2009 and passed away seven months later at the age of 46.… read more »

MND Scotland Manifesto Support

MND Scotland produced its Manifesto for People Affected by MND at the end of last year, in consultation with people affected by the illness. Before Christmas we sent it to the main political parties asking them to consider it in their own manifesto development. Since the start of 2016 our supporters have been contacting their local candidates and over 100 candidates have pledged their support. All the manifestos for the… read more »