Skip to Content

News & Events

We are in the running for Scottish Charity of the Year

  MND Scotland is celebrating being named as Charity of the Year finalist in the 2015 Scottish Charity Awards. Organised by Scottish Council for Voluntary Organisations (SCVO), the awards celebrate the amazing work of charities, community groups and people across Scotland who dedicate themselves to making Scotland a better place to live. MND Scotland has had an incredible year, raising awareness of this devastating illness and supporting those affected by… read more »

Gordie’s MND Blog

  Gordon set up his blog to give readers the opportunity to understand what it is like being diagnosed and living with MND – from his own personal experience. Gordon talks about his diagnosis in 2005 and how he began noticing symptoms in 2003. From there he charts, in detail, living with MND from year to year. Read Gordie’s MND Blog here. 

Lucy’s Fight

  In May, Lucy Lintott jointly won the Fundraising Hero and Our Hero awards at the Daily Record Our Heroes Awards 2015, alongside Gordon Aikman. Both are fundraising for MND Scotland and the reason for this is that both of them have MND. Lucy Lintott is the youngest person in Scotland to be diagnosed with MND. Lucy was just 19 when she was diagnosed but decided she was not going to let… read more »

Christina McKelvie MSP stays silent for MND

  Yesterday morning (Thursday 18th) Christina McKelvie, MSP for Hamilton, Larkhall and Stonehouse, took on Silence Speaks – our Awareness Week fundraising activity. Christina did her constituent briefing using only notes and gestures to communicate. Being a Politician and used to being outspoken Christina said: “This was rather difficult and frustrating as I wanted to ask so many questions but had to stick to writing notes and using gestures. “I… read more »

First Minister backs our calls for communication equipment

  The First Minister, Nicola Sturgeon, and leading opposition politicians have vowed to speak with one voice when it comes to improving access to communication equipment for Motor Neurone Disease patients. The comments come as Nicola Sturgeon, Kezia Dugdale, Ruth Davidson, Patrick Harvie and Willie Rennie today (Tuesday) trialled cutting-edge “eye-gaze” technology – which allows patients who have lost their voice to speak again – as part of MND Awareness… read more »

‘Let me speak’

MND Scotland Communications Equipment Campaign   People with MND can lose the ability to walk, eat, speak and breathe unaided.  80 – 95% will have their speech affected.  They may struggle to speak clearly or lose their ability to speak altogether. For many people with MND, losing their ability to speak is the very worst symptom of the illness. Those affected need to find alternative ways of communicating with loved ones… read more »

Change your profile picture to a silent selfie

A person’s voice is part of their identity. Could you imagine an hour…a week….a lifetime without speech? One of the most devastating things people with MND face is losing their voice, and communication difficulties is something that 80-95% of people with MND will experience. Read the personal stories of two people with MND who have lost or are losing their speech: Elizabeth’s story  Patricia’s story This week (June 15th to 21st)… read more »

MND Campaigner to receive honorary degree

  MND Scotland Trustee, Gordon Aikman, is set to receive an honorary degree from the University of Edinburgh. Gordon – who successfully lobbied the First Minister to publicly fund and double the number of specialist MND nurses across Scotland – will receive a honorary doctorate (honoris causa) at a graduation ceremony on Saturday 4 July 2015. The 30 year old – who is a former graduate of the University of Edinburgh… read more »

Double win for MND at The Scottish Charity Awards

  What an incredible night for MND Awareness!! Last night (Thursday 4th June) we got our glad rags on, and hopped on the train to the capital for the SCVO Scottish Charity Awards. We were finalists for Charity of the Year and….we won!!! Our Chief Executive said of winning: “We are delighted to win this prestigious award in what’s been a phenomenal year for us. The ice bucket challenge took the… read more »

Lend Lease Charity Partnership 2015

We are delighted to announce that MND Scotland will be one of the charity partners for 2015 with multinational property and infrastructure company Lend Lease. Lend Lease’s charitable activities are organised by their staff as part of their Guvnors Club They will be holding their annual Golf Day at Craigielaw Golf Club on 4th June, and organising the Guvnors Club Ceilidh in November. Staff will also be participating in a… read more »

On your marks…..

  The smell of hotdogs and fried onions filled the air at Strathclyde Park, taking everyone back to childhood summers spent at Gala Days and street parties. Like these days, the atmosphere on Saturday (16th May) was one of great fun and excitement. It was the annual MND Scotland Strathclyde Park Fun Run. We had 850 people already pre-registered – the highest number yet, with more expected to sign up on… read more »