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MND Scotland Unveils £450k Cash Injection for MND Research

MND Scotland has unveiled a major £450,000 investment to fund 3 new Motor Neurone Disease (MND) research projects. At the start of MND Awareness Week the charity is warning that more needs to be done to help find a cure for this terminal illness and they are appealing to the public to help raise more money for MND research. They are also urging the Scottish Government to establish Scotland as… read more »

A poem for my mum

By Linda Pearse This year was to be the best year ever, So many happy times and things to remember. Sadly not everything could be sweetness and light, We noticed the slurring and knew something wasn’t right. So very worried and hopeful we were wrong, All the while knowing we had to stay strong. Lots of questions, tests and checks were carried out. What could it be? Did we want… read more »

How My Dad Fought Back against Motor Neurone Disease

By Joyce McQuilken “My father John McQuilken was diagnosed with MND in July 2007, just a month before his 80th birthday, after a few years of increasing leg weakness, falls and broken bones. He died on 26th January 2012. “With the increased awareness of MND and successes of MND Scotland and their supporters in recent years, I wanted to contribute by also sharing our story. The doubling of MND nurses,… read more »

International Rights of People with ALS/MND

MND Scotland is proud to support the International Alliance of ALS/MND Associations’ fundamental rights for people living with ALS/MND worldwide.  Find out more.

Aberdeen Science Centre Raises Awareness of Motor Neurone Disease

In the run up to MND Awareness Week (20-26 June) Aberdeen Science Centre will be hosting a public engagement event on Saturday 18th June, from 11am to 5pm. Dr Gemma Catton, STEM Learning Manager at Aberdeen Science Centre, has witnessed how devastating MND is and said “In August 2013, my Mum was diagnosed with MND at the age of 60. Over the next 17 months, she lost the ability to… read more »

Scottish Charity Awards – Oh What a Night!

Gordon Aikman (31, Edinburgh) and Lucy Lintott (21, Moray), who both suffer from Motor Neurone Disease (MND), have jointly won the Charity Champion Award at this year’s Scottish Charity Awards. Lucy also left with the People’s Choice Award, which was decided by a public vote. They were both diagnosed with the rapidly progressing terminal illness MND. At the time Gordon was 29 years old and  Lucy just 19. Since then… read more »

Aberdeenshire mum to run 12 marathons in 12 months

Claire Kelly (32), from Alford in Aberdeenshire, has set herself the mammoth challenge of running 12 marathons in 12 months, in memory of her uncle who passed away from Motor Neurone Disease (MND). Dominic Byrne, from Co.Laois in Ireland, passed away from MND in October 2015. MND is progressive, terminal illness which prevents signals from brain reaching the muscles, causing muscle weakness and wasting. This means someone can lose the… read more »

Gordon reaches £500,000 target

Motor Neurone Disease patient and campaigner Gordon Aikman has raised over HALF A MILLION POUNDS for research into a cure for the condition.   Gordon was diagnosed with the disease two years ago at the age of 29.  Soon after his diagnosis, he founded GordonsFightback.com  to raise funds for research and lobby for better care for people with the condition. His campaign has received almost 6,000 donations big and small.  A whole series… read more »

Coast to Coast Cycle Challenge

A Coast to Coast cycling challenge organised by staff from BP has raised over £1 million for good causes over its eight-year lifespan. The eighth Coast to Coast challenge, which took place from 20-22 May, was the organisers’ largest yet with a firm focus on reaching the £1 million target. Seventy current and former BP employees completed the 250-mile cycle, almost twice the amount who have taken part in previous years. The… read more »

National MND Care Team Meeting

On 7th January 2015, First Minister Nicola Sturgeon committed to doubling the number of MND Specialist Nurses in Scotland and to ensuring that they are paid for from public funds, instead of being 80% funded by MND Scotland. On Wednesday 18th May 2016 the first National Care Team meeting was held since these new positions were filled. This meeting also saw Judith Newton, formerly an MND Clinical Specialist, attend her… read more »