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Ice Bucket Challenge Update

  To ensure your Ice Bucket Challenge donation is used in Scotland, please text ICED14 £5 (or £10) to 70070 or visit www.justgiving.com/icebucketmndscotland/   So far, thousands of people in Scotland have taken part in the Ice Bucket Challenge for MND Scotland. An incredible £170,000 has been raised so far, and this will make a huge difference to the lives of people in Scotland who are affected by MND. This… read more »

East Ayrshire Council’s personal care charging u-turn

East Ayrshire Council has finally agreed to amend its grossly unfair personal care charging policy for under 65s who are terminally ill. Andy Masterton, who has MND, and was featured in our Personal Care Charging Campaign and BBC Scotland coverage of the campaign, has now had his care costs waived by East Ayrshire. We launched our Personal Care Charging Campaign at the start of MND Awareness Week in June. We… read more »

Ice Bucket Challenge

Earlier this year you helped raise awareness of Motor Neurone Disease (also known as ALS) by sharing your MND High Five. Today we’re asking you to join in with the latest awareness raiser that started in the USA (yep, it’s the American’s fault!). Sometimes, to make people aware of something as horrible as MND we need to ‘Do Something’ a bit different. Just in case you doubt how effective this… read more »

MND Scotland Open Day 2014

This year’s MND Scotland Open Day and AGM will again take place at the  Stirling Management Centre on Saturday 6th September. Registration takes place from 9.30 am and the day will close with tea and coffee at 2.30pm. We have a really interesting agenda , and guest speakers include Lothian and Glasgow Consultants Dr Anthony Bateman and Dr Scott Davidson who will talk about Respiratory Development and Management. Laura Stephenson, MND Scotland Research Nurse, will update us on progress… read more »

UK comedy acts Stand Up Against MND

          Some of the UK’s best comedy acts will be joining Better Together aide, and Motor Neurone Disease sufferer, Gordon Aikman for a night of stand-up at the Fringe to raise money to fund a cure for the fatal condition. “Stand Up Against MND” will see alternative comedy legend, star of BBC’s “Grumpy Old Men” and Radio 4 regular, Arthur Smith, line up with TV comedy… read more »

Gordon Aikman’s 5-point Fightback!

Gordon Aikman launches his 5-point fightback website, gordonsfightback.com today.  Read all about it and get involved. During MND Awareness Week in June, Gordon, who was recently diagnosed with MND at the age of just 29, shared his moving and inspirational personal story with the press.  Gordon’s story was soon picked up on Twitter and retweeted by a wide range of influential people including the First Minister, Alex Salmond, Ed Miliband… read more »

Mount Kilimanjaro 2015

  We’re looking for 12 MND Scotland supporters to join us in climbing Mount Kilimanjaro in September 2015. It’s the highest mountain in Africa and the largest free-standing mountain in the world. The feeling you get as you climb Kilimanjaro and watch the sun rise over the vast African plains with other MND Scotland supporters will be a truly incredible experience – one you’ll never forget. This event, with Really… read more »

Edinburgh Fun Run 2014 – registration open!

  Our annual Fun Run at Holyrood Park, Edinburgh will take place on Sunday 14th September 2014 at 11am! Join hundreds of other runners, walkers and joggers taking part in the scenic 5k route to raise money to fight Motor Neurone Disease. Starting and finishing at the Parade ground near the Education Centre, and following the park road around Arthur’s Seat, this event promises beautiful views of Edinburgh. Entry is… read more »

40 MSPs attend MND Scotland Parliamentary Reception

On Wednesday evening, in the middle of MND Awareness Week, 40 MSPs attended MND Scotland’s Parliamentary Reception to speak to our 90 guests and hear about issues important to them. Our guests were predominantly people with MND, their families and friends, and supporters of the charity. 40 MSPs is a really high turnout for an event like this and we welcomed the opportunity to raise awareness of MND, MND Scotland… read more »

ONE #GLOBALTEAM, ONE GOAL: A world free of ALS/MND

Join us on ALS/MND Global Day, 21 June 2014. About The Campaign MND Scotland, together with other motor neurone disease organisations from around the world, are looking to engage with professional sports people from a number of sports, including rugby, American football, soccer, ultra-marathon running, tennis and swimming with the aim of raising awareness of Motor Neurone Disease (also known as ALS in different parts of the world). We are… read more »