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Unacceptable PIP benefits delays

  Personal Independence Payment delays Decisions ‘can take about 21 to 26 weeks’ says DWP The length of time disabled people are having to wait to find out if they are eligible for Personal Independence Payment (PIP) is unacceptable, says the Work and Pensions Committee. The majority of people applying for PIP undergo a face-to-face assessment to determine eligibility, which is carried out by private contractors. But some claims are… read more »

High Five – Thank You!

On 20th March we launched our High Five campaign on Facebook, and hoped that our friends would help to raise a little bit of awareness about MND. We’ve been absolutely stunned by the response. In just a few days our friends helped to achieve 22,712 views of the original post, which has been shared 249 times. More than 150 people also posted their own High Fives in support or in… read more »

Would you like to give your views on new carers legislation?

Carers’ Legislation: Online Questionnaire Do you, or have you recently (in the last 2 years), provide/d care for a loved one with MND?  If so, the Scottish Government is consulting on new carers’ legislation and would like to hear your views. If you would like to get involved, we would really appreciate you completing MND Scotland’s questionnaire by Friday 11th April. 

MND High Five

Give us your High Five to fight MND, and together we’ll raise awareness of Motor Neurone Disease. Post your High Five to your Facebook or Twitter and tag MND Scotland so we can share it – or post one directly to our Facebook wall. If you’re not on Facebook, then you can email a photo of your High Five and we’ll share it for you. You can also make a… read more »

Strathclyde Park Fun Run 2014 – Registration Now Open!

  Our annual Fun Run at Strathclyde Park will take place on Saturday 10th May 2014 at 11am! Join hundreds of other runners, walkers and joggers taking part in our biggest event of the year to raise money to fight Motor Neurone Disease. Entry is just £10 (£12 on the day), and it’s free for MND Scotland members, those with MND and under 16s. We place the emphasis very much… read more »

Applause for two young carers

  The RBS Real Heroes Award Ceremony is an annual celebration held in recognition of the work of some of Scotland’s most deserving and inspiring individuals. It was an event attended by high profile Scottish celebrities, award nominees and their family members.   Fraser Anderson and Scott Wilson were nominated for the ‘RBS Young Carer of the Year’ by Fraser’s dad, John, who has MND. Their story was broadcast on… read more »

Poem by Mark Bennett

Mark Bennett had been talking about colouring his beard red for MND Scotland for many months, and he finally got round to it. He raised £202, and even wrote a poem about it – thanks Mark! Why beard of red? Are you off your head?               With tree-fall, brain-bash? End means to make cash! Not mind a jot                                                         To get cash pile,                                                             Look like a fool,                                                         Red beard, big smile! To… read more »

MND Scotland ‘Time to Live’ Grants 2014

Christmas is over, the weather is wild… If you are lifting your spirits by planning a short break or holiday, the second round of our Time to Live grant programme is now open!   We are again able to offer small grants towards the cost of a holiday or other ‘time out’.  This is funded by the Scottish Government through the Short Breaks Fund, run by Shared Care Scotland. The… read more »

Do Something: 2014

We know that when someone close to you is affected by MND, many people just want to Do Something.  We know that many people fundraise for MND Scotland because sometimes it’s the only thing they can do. We know it’s not easy, but that’s why every MND Scotland fundraiser is doing something amazing – fighting Motor Neurone Disease. So, in 2014, we’re asking if you could help to make a real difference and Do… read more »

Rugby Legend Joost van der Westhuizen in MND research drive

Joost van der Westhuizen, 42, former South African rugby star was diagnosed with motor neurone disease in 2011. He is to team up with Edinburgh university researchers to help tackle the disorder.  The former scrum-half was part of the World Cup-winning Springboks squad of 1995, he said: “I realise every day could be my last. It’s been a rollercoaster from day one and I know I’m on a deathbed from now on. I’ve… read more »