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News & Events

First Minister Promises to Review MND Care

Gordon Aikman and our CEO, Craig Stockton, met with First Minister, Nicola Sturgeon, yesterday to discuss care provision for people with MND. Gordon and Craig highlighted: the postcode lottery of personal care charging for terminally ill people in Scotland, first highlighted in our campaign in June. that most of the funding for Scotland’s NHS employed MND specialist nurses comes from MND Scotland charitable donations; and, that more MND specialist nurses… read more »

Stand Up For MND – Tickets Now On Sale!

We are delighted to announce that a galaxy of comedy stars will be coming together to raise funds for MND Scotland, including Frankie Boyle, Gary Little, Janey Godley and many more to be announced! The show, in support of #GordonsFightback, will take place at the Kings Theatre, Glasgow on 23rd March 2015. Tickets are now on sale priced £20 and £15 (additional fees apply) from http://www.glasgowcomedyfestival.com/shows/#!/shows/941 They’re selling fast, so you’ll… read more »

Gordon Aikman secures First Minister meeting

Last Thursday evening, Gordon Aikman won the Judges’ Award at the Herald’s prestigious Scottish Politician of the Year Awards 2014, for his Gordon’s Fightback campaign. During his inspiring acceptance speech, Gordon highlighted that there are only 7 MND specialist nurses in Scotland and how funding for their posts relies on charitable donations to MND Scotland. Gordon finished his speech by asking First Minister, Nicola Sturgeon, for her support. Today, Gordon… read more »

Support from Heart of Midlothian FC

Last weekend MND Scotland volunteers were invited to hold a collection at Tynecastle Stadium before the Hearts v Rangers match, and an incredible £1,270.27 was generously donated by the fans of both teams. A Heart of Midlothian FC spokesman said “MND touches many in our society and football is not isolated from its effects and it doesn’t matter what team you support. Here at Tynecastle, Hearts Director Robert Wilson suffers with the… read more »

Downing Street Reception

MND Scotland and Gordon’s Fightback, the campaign launched by Gordon Aikman during the summer, held a reception at 10 Downing Street on 4th November. The reception, hosted by Samantha Cameron, was attended by a wide range of celebrities and senior politicians from across the political spectrum, and heard Gordon appeal for more funding towards research into a cure for motor neurone disease. Gordon said “It’ll be too late for me, but… read more »

Helen Kendall’s Story

Helen was diagnosed with MND in November 2013. Since then, she has created a personal blog about her experiences of living with MND  entitled  ‘Me and ‘Mandy’ my MND. ‘ As a retired museum curator, Helen has used her professional skills to categorize her experiences of MND in a very organised, thoughtful but often extremely  witty manner. You can follow her blog and sign up to receive email each time she… read more »

Fernando Ricksen Tribute Match Supports MND Scotland

Rangers FC have confirmed it will host a tribute game at Ibrox Stadium between Rangers Legends and an All Stars team in honour of former captain Fernando Ricksen, who was diagnosed with Motor Neurone Disease 12 months ago. The tribute match will take place at a date to be announced shortly. All profits from the game will be split equally four ways between Fernando, his daughter Isabella, MND Scotland and… read more »

To Absent Friends

To Absent Friends, a People’s Festival of Storytelling and Remembrance runs from 1st to 7th November and is an opportunity to remember, tell stories, celebrate and reminisce about people we love who have died.   The To Absent Friends website hosts a wide range of information including details of events and a great ‘wall of remembrance’ where you can post messages about loved ones who have passed away. Some people feel… read more »

Time To Live Grants Now Available

With winter approaching, you may be thinking about a Christmas trip, or dreaming of a break in the spring!  We are delighted to announce that MND Scotland is again able to offer small grants towards the cost of a holiday or other ‘time out’.  This is funded by the Scottish Government through the Short Breaks fund run by Shared Care Scotland. The purpose of the grants is to give people with… read more »

Now Hear Me: It’s My Right To Speak

Not everyone has the ability to speak but being able to have your say is a basic human right. A new campaign has been launched to encourage all of us to find out what we can do to support those who use ‘alternative and augmentative communication’ (AAC). AAC can include various methods that can support or get around problems that an individual might have with speaking or understanding information. These… read more »