Can you see him, my night watch-man,At the setting of the sun,Going round to turn my lights outOne by one First the talking, then the eating,Then the descending, floor by floor,Turn the power off, dowse the heating,Shut the door. Cannot stop him, he’s a jobsworth,Solid, stolid Union type;Only doing what he’s told to.Musn’t gripe! Who employed him, dreadful sentry?Middle management for sure,Once they make the hapless entry,There’s no cure.

Speech is taken, so much for granted, loosing mine, I wish I’d ranted, Against the loss of blether, tongue lassoed, by a Medical tether. Out in the Wheelchair, pushing against a Gale, The effort would be easier, if I fit a sail. Having got the hang of tacking, how do I make it stop, Falling over and rolling, I’d need help picking up.I’m used to falling, in the confines of… read more »

You took over my life, you didn’t ask me,I didn’t know what you would do to me.You made me worry and caused me stress,I as a person became less and less.I have to stay strong, with hope as my friend,I need to cope right through to the end. You take more of my loved one away each day,I fill the spaces you leave empty and I stay.I have no choice… read more »

This is the Story of the late Tim Lester. He was an enthusiastic supporter of MND Scotland. Fundraising, telling his story to the press and others affected by motor neurone disease. The early effects of Motor Neurone Disease can often be barely perceptible. Many people feel that it’s mad to visit their G.P. Tim Lester from Spey Bay in Aberdeenshire was enjoying a last minute deal in Egypt with his… read more »

John Mackie MBE was diagnosed with MND on 6 March 1998 and as a result, he was medically discharged from the RAF as a Warrant Officer in August 1998 after 34 years of service. John said his diagnosis was a “shock and a relief”. It had taken almost 2 and a half years to diagnose and he was almost 50 years old, ready to celebrate the marriage of his youngest… read more »

The late Nancy Baird, from Drongan took part in an interview for Aware in 2009 which allowed readers of our official newsletter to get a taste of life with MND from the viewpoint of a sufferer. Nancy worked at a local hairdressers for 55 years when she began to feel the ‘drop foot’ symptoms associated with Amyotrophic Lateral Sclerosis (ALS), the most common form of MND. Her doctor told her… read more »

This is the first Personal Story we have posted since setting up our Personal Stories and Poems section. Eileen chose to share her experience of MND on film. To share your own story, please email bryan.carroll@mndscotland.org.uk

If you are a Carer in the Fife or Tayside region, we provide an opportunity for you to have a few hours relaxation time.   The 2012 dates of Carer Drop-in Days at Rothes Hall in Glenrothes and Cornhill MacMillan Centre in Perth are now on the website.  They give you some time to meet others, relax and take a break with refreshments sandwiches and sometimes complementary therapies. Why not come along? Check out the dates… read more »

Our featured Fundraiser today is Leanne Thorpe.  Leanne’s been raising money to fight MND for 7 years, during which time she’s raised over £10,000 in memory of her Gran.    Do something special.  What does that mean to you? To me, it means my pledge to MND Scotland for 2012.  I am already planning & hosting an Alternative Race Night & Disco at the King’s Park Hotel on 6th October,… read more »

  Since 2004 we’ve operated the Lang Break caravan near St Andrews (more information here: http://www.mndscotland.org.uk/services/holiday-facilities/lang-break-caravan/) which offers a specially-adapted short break facility for those with MND and their families.    Last year our Board of Trustees made the decision to grow this area of our operation, and we purchased a chalet at Tralee Bay Holiday Park near Oban.  With the help of the RS Macdonald Charitable Trust, who’ve funded many… read more »