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To Absent Friends

To Absent Friends, a People’s Festival of Storytelling and Remembrance runs from 1st to 7th November and is an opportunity to remember, tell stories, celebrate and reminisce about people we love who have died.   The To Absent Friends website hosts a wide range of information including details of events and a great ‘wall of remembrance’ where you can post messages about loved ones who have passed away. Some people feel… read more »

Time To Live Grants Now Available

With winter approaching, you may be thinking about a Christmas trip, or dreaming of a break in the spring!  We are delighted to announce that MND Scotland is again able to offer small grants towards the cost of a holiday or other ‘time out’.  This is funded by the Scottish Government through the Short Breaks fund run by Shared Care Scotland. The purpose of the grants is to give people with… read more »

Now Hear Me: It’s My Right To Speak

Not everyone has the ability to speak but being able to have your say is a basic human right. A new campaign has been launched to encourage all of us to find out what we can do to support those who use ‘alternative and augmentative communication’ (AAC). AAC can include various methods that can support or get around problems that an individual might have with speaking or understanding information. These… read more »

Christmas Cards Now Available

MND Scotland’s range of Christmas cards and merchandise are now on sale in our online shop. All funds raised by the sales of our Christmas cards and merchandise will be used to provide our essential care and support services to people affected by MND. Sending MND Scotland Christmas cards is also a great way to help raise much-needed awareness of the disease. You can also help us by sharing the… read more »

Job Opportunities at MND Scotland

MND Scotland is currently recruiting for the following posts: Communications Officer 35 hours per week, permanent – £22,520 – £27524 At a time of unprecedented awareness and activity, MND Scotland is seeking to recruit a Communications Officer.  The role includes producing our quarterly magazine Aware; developing and responding to opportunities to generate media coverage and awareness; and, managing MND Scotland’s website and social media channels in collaboration with colleagues.  This… read more »

Ice Bucket Challenge – Thank You

We are delighted to announce that the total amount raised by the Ice Bucket Challenge in Scotland is nearly £450,000! At our Annual Conference Chief Executive, Craig Stockton, thanked everyone who has taken part and donated What This Will Do MND Scotland will ensure that this huge and unplanned amount of donations will be used to provide the maximum benefit to people and families in Scotland affected by MND, and also… read more »

Scotland United Against MND

Personalities across politics, film and TV will take part in the “Scotland United Against MND” penalty shoot-out on Wednesday 3rd September. Among the players lining up for the spot kicks at Ainslie Park Stadium for Yes Scotland will be star of Ken Loach’s film “The Angels’ Share”, Paul Brannigan, River City star Garry Sweeney and Yes Scotland chief Blair Jenkins. Better Together’s line up will include Labour’s Shadow Foreign Secretary,Douglas… read more »

Ice Bucket Challenge Update

To ensure your Ice Bucket Challenge donation is used in Scotland, please text ICED14 £5 (or £10) to 70070 or visit www.justgiving.com/icebucketmndscotland/   So far, thousands of people in Scotland have taken part in the Ice Bucket Challenge for MND Scotland. An incredible £400,000 has been raised so far, and this will make a huge difference to the lives of people in Scotland who are affected by MND. This has… read more »

East Ayrshire Council’s personal care charging u-turn

East Ayrshire Council has finally agreed to amend its grossly unfair personal care charging policy for under 65s who are terminally ill. Andy Masterton, who has MND, and was featured in our Personal Care Charging Campaign and BBC Scotland coverage of the campaign, has now had his care costs waived by East Ayrshire. We launched our Personal Care Charging Campaign at the start of MND Awareness Week in June. We… read more »

Ice Bucket Challenge

Earlier this year you helped raise awareness of Motor Neurone Disease (also known as ALS) by sharing your MND High Five. Today we’re asking you to join in with the latest awareness raiser that started in the USA (yep, it’s the American’s fault!). Sometimes, to make people aware of something as horrible as MND we need to ‘Do Something’ a bit different. Just in case you doubt how effective this… read more »