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Let’s Get Benefits Right for People with MND

MND Scotland is calling on the Scottish Government to ensure people with Motor Neurone Disease (MND) will be able to access certain benefits without assessment for the rest of their lives. The Scottish Government is currently asking for views about The Future of Social Security in Scotland. One of the questions they are asking is if some people should be ‘automatically entitled’ to benefits. This could mean that people with… read more »

Lucy Lintott shortlisted as UK face of #givingtuesday

Local charity hero Lucy Lintott has been shortlisted to become the UK face of #givingtuesday – the global day of giving. Lucy is one of ten candidates shortlisted from across the country vying to be named the UK’s ultimate charity champion The winner – set to be revealed at the start of November – will help front this year’s campaign. They will play a leading role in inspiring people across… read more »

Meet MND Scotland’s new Chairman

Lawrence Cowan   Why did you want to be part of the MND Scotland team? Essentially, I want to turn my grief into good. I want to support MND Scotland’s brilliant work to help cure this terrible disease and transform care. Gordon Aikman is one of my best friends. He was diagnosed with MND at the age of 29. I’ll never forget when he told me he had MND. The… read more »

Call for MND Research Projects 2016

One of the key priorities of MND Scotland is the promotion of research into all aspects of Motor Neurone Disease (MND), and as such we wish to invite applications for our Research Project Awards. This scheme aims to stimulate and increase high quality research projects into MND. Grants will be awarded for a limited duration up to a maximum of three years.  For projects lasting longer than one year, continuation… read more »

Call for MND to be exempt from reassessments for benefits

Work and Pensions Secretary, Damian Green, announced at the Conservative Party Conference today, Tuesday 4th October, that some people will not be required to be reassessed for benefits. He stated that making people with conditions which will not get better, turn up for repeated assessments was ‘pointless, bureaucratic, nonsense’ and that it is ‘not right to ask that people be tested time after time – we will stop it.’ CEO… read more »

MND patient raises over £100,000

Calum Ferguson (52), who has Motor Neurone Disease (MND), has reached his outstanding fundraising target of £100,000 for MND Scotland, by cycling 5,000km on his rehab cycling machine. The Vice President for Investment Management Company, T Rowe Price, and dad of three, from Dunblane, was diagnosed with MND in March 2010. MND is a rapidly progressing terminal illness, which stops signals from the brain reaching the muscles. This may cause… read more »

Father and daughter fundraising for MND

A terminally ill father and his daughter, from the Isle of Lewis, are fundraising for the charity MND Scotland and raising awareness of the illness, Motor Neurone Disease (MND). Donald Ferguson MacDonald (66) was diagnosed with MND – a progressive terminal illness which stops signals from the brain reaching the muscles – in October 2014. MND can cause someone to lose the ability to walk, talk, eat, drink and breathe… read more »

Scot Gov Commitment to Fund MND PhDs Becomes a Reality

This week the Scottish Government published its Programme for Government 2016-17. As a result of MND Scotland campaigning, it includes a commitment to fund 3 PhD research studentships into Motor Neurone Disease (MND). Yesterday the Chief Scientist Office made this commitment a reality by inviting applications from Scottish Universities interested in running these programmes. MND Scotland produced its Manifesto for People Affected by MND at the end of last year,… read more »

Meet Team Machu Picchu 2017

On 2nd September 2017 our team of 30 will embark on a journey of a lifetime and trek to Machu Picchu, in Peru, to raise money for, and awareness of, Motor Neurone Disease. Robert Lintott Robert Lintott’s daughter, Lucy Lintott (22), was diagnosed with the terminal illness, Motor Neurone Disease (MND), almost three years ago, when she was just 19 years old. Opening up publicly for the first time he… read more »

Father of youngest MND sufferer pens open letter

Robert Lintott’s daughter, Lucy Lintott (22), was diagnosed with the terminal illness, Motor Neurone Disease (MND), almost three years ago, when she was just 19 years old. Opening up publicly for the first time he wrote this letter to her: Tuesday, November 19, 2013 is the day I will never forget. It changed our family’s life forever. No father should have to write a letter like this to his daughter,… read more »