MND Scotland provides a professionally run an Information and Library Service for patients and health and social care professionals.
Our Information Officer is happy to deal with any general enquiries regarding motor neurone disease. The service is free for people with MND, their families and carers. Contact the Information Officer to find out more.
Information for People with MND and their Carers
MND Scotland has prepared a range of factsheets to be used in our Patient Information Folder for people affected by MND and those who look after them. Our Care Team can provide clients with a folder containing basic information to explain more about MND and issues which may affect them. These factsheets cover all aspects of the disease from diagnosis onwards and include topics which are often difficult to discuss. You may not feel ready to face certain issues yet, but the factsheets are there when you are ready. Factsheets are available in a downloadable format, but may also be requested from their care team specialist or the Information Officer as and when you wish more information.
For anyone who is newly diagnosed and wishing to know more about MND, we recommend Dr. David Oliver’s ‘MND – A Family Affair’
Dr. Oliver is a specialist in palliative care with many years of experience in the field of Motor Neurone Disease. His book is a valuable resource offering guidance and practical information for those affected by MND. We have several copies of this book in our library which we are happy to lend. Please contact us if you wish to borrow a copy.
Other books and resources are available and our recommended reading lists can be downloaded.
- MND Resources for patients & families 2012 [pdf 180Kb]
- Resources for Parents, Children & Teenagers 2016 [222Kb]
Current and back issues of our quarterly newsletter, “Aware”, are available, both in hard copy and for download.
MND Scotland Library
We are happy to lend items from our library . Please contact the Information Officer for more details.
We have books, journals, conference proceedings and a collection of videos and DVDs on all aspects of MND. These include Carers Issues, Welfare & Benefits, Disability Issues, Counselling (Emotional Support) and Palliative Care & Bereavement.
A visit to the library will allow you to make the best use of our service, so please make an appointment as the information officer works part-time. The premises have parking and disabled access.
Information for Health & Social Care Professionals
As very good introduction to MND, we recommned ‘Palliative Care in Amyotrophic Lateral Sclerosis – From Diagnosis to Bereavement’ by David Oliver, Gian Domenico Borasio and Wendy Johnston’, 3rd edition 2014, published by Oxford University Press.
Reading List for Health Care Professionals
The reading list for health and social care professionals contains details of the latest books, guidelines and other resources on all aspects of MND.
Our Library Catalogue
We have books and resources on the following topics which we are happy to lend
- Motor Neurone Disease
- Palliative Care & Bereavement
- Disability Issues
- Carers Issues
- Health Care
- Welfare & Benefits
Our library resources can be browsed via the Scottish Health Libraries catalogue (Shelcat) from any computer with internet access.
We have access to The Knowledge Network, a national online knowledge service provided by NHS Education for Scotland. With access to over 5000 journals, 100s of e-books, and 100+ database, literature searches on any aspect of MND can be requested. Parts of the site are ‘open access’ which means anyone can view them while other parts require an Athens password to gain access.
We administer the ‘Motor Neurone Disease Community Space,’ which is accessible through The Knowledge Network. Any Health and Social Care Professionals with an ‘Athens’ account for The Knowledge Network can request access to the space for publications, news and discussions on aspects of MND.
Scottish Health Information Network
MND Scotland is a member of the Scottish Health Information Network (SHINE). This is a consortium of Scottish health libraries from different sectors including NHS Scotland, the education sector and other voluntary sector organisations.
SHINE aims to promote collaborative effort and partnership between health care library and information services in all sectors.