Media Information

About Motor Neurone Disease

Motor Neurone Disease (MND) is a rapidly progressing terminal illness, which stops signals from the brain reaching the muscles. This may cause someone to lose the ability to walk, talk, eat, drink or breathe unaided. There is currently no cure or effective treatment for MND and the average life expectancy from diagnosis is just 18 months.

Facts about Motor Neurone Disease 

  • MND is a rapidly progressing terminal neurological illness, which stops signals from the brain reaching the muscles. This causes muscle weakness and wasting.
  • Symptoms may include losing the ability to walk, talk, eat, drink or breathe unaided.
  • Average life expectancy is just 18 months after diagnosis.*
  • There are around 400 people in Scotland currently living with MND.
  • On average almost 200 people are diagnosed each year in Scotland.*
  • MND is on the increase. We do not yet know why, which is why it is so important for MND Scotland to continue investing in research.

*data from the Scottish MND Register.

About MND Scotland 

MND Scotland is the leading charity in Scotland providing care and support to people affected by Motor Neurone Disease, as well as funding vital research into finding a cure.

We campaign on behalf of people affected by MND, and raise awareness of the disease, to ensure their voice is heard.

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Contact

Niamh Callan

Niamh Callan (Email)

Communications Manager

For all press enquiries please contact Niamh by emailing above or calling on 0141 332 3903 / 07736 269 444.

Craig Watson

Craig Watson (Email)

Communications Officer

For all press enquiries please contact Craig by emailing above or calling on 0141 332 3903 / 07736 882 415.

Latest news and events

Find out what's happening at MND Scotland.

Abbie's MND Marathon for Scots Football Star

NEWS

Intensive care nurse takes on London Marathon for cousin-in-law and former Scots football star who is living with MND.

12 April 2021

Granddaughter’s 50 mile memory walk for MND

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Shauna is stepping up to take part in the Virtual Kiltwalk in memory of her ‘Bampa’ who died of MND.

29 March 2021

MND drug trial launches in Inverness

NEWS

The MND-SMART clinical trial opens its seventh UK centre in Inverness for participants across NHS Highland.

09 March 2021

Nucleus staff celebrate huge fundraising total

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Edinburgh company raises funds in memory of colleague Mike Wallis.

12 February 2021

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