Media Information

About Motor Neurone Disease

Motor Neurone Disease (MND) is a rapidly progressing terminal illness, which stops signals from the brain reaching the muscles. This may cause someone to lose the ability to walk, talk, eat, drink or breathe unaided. There is currently no cure or effective treatment for MND and the average life expectancy from diagnosis is just 18 months.

Facts about Motor Neurone Disease 

  • MND is a rapidly progressing terminal neurological illness, which stops signals from the brain reaching the muscles. This causes muscle weakness and wasting.
  • Symptoms may include losing the ability to walk, talk, eat, drink or breathe unaided.
  • Average life expectancy is just 18 months after diagnosis.*
  • There are around 400 people in Scotland currently living with MND.
  • On average almost 200 people are diagnosed each year in Scotland.*
  • MND is on the increase. We do not yet know why, which is why it is so important for MND Scotland to continue investing in research.

*data from the Scottish MND Register.

About MND Scotland 

MND Scotland is the leading charity in Scotland providing care and support to people affected by Motor Neurone Disease, as well as funding vital research into finding a cure.

We campaign on behalf of people affected by MND, and raise awareness of the disease, to ensure their voice is heard.

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Contact

Niamh Callan

Niamh Callan (Email)

Communications Manager

For all press enquiries please contact Niamh by emailing above or calling on 0141 332 3903 / 07736 269 444.

Craig Watson

Craig Watson (Email)

Communications Officer

For all press enquiries please contact Craig by emailing above or calling on 0141 332 3903 / 07736 882 415.

Latest news and events

Find out what's happening at MND Scotland.

Coronavirus Updates

NEWS

We will be posting the latest updates on any changes to our services and events here.

13 March 2020

ScotRail’s Kelly won’t let lockdown knock her fundraising off track

NEWS

Kelly has turned her home into a gym to keep up her training during the lockdown.

01 April 2020

Stonehaven family take on Kiltwalk for Dad with MND

NEWS

A wife and two daughters are set to take on the 15-mile Aberdeen Kiltwalk for MND Scotland.

12 March 2020

First person starts new MND drug trial

NEWS

The first participants of MND-SMART have now been enrolled in Edinburgh and are receiving potential treatments.

06 March 2020

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