Media Information

About Motor Neurone Disease

Motor Neurone Disease (MND) is a rapidly progressing terminal illness, which stops signals from the brain reaching the muscles. This may cause someone to lose the ability to walk, talk, eat, drink or breathe unaided. There is currently no cure or effective treatment for MND and the average life expectancy from diagnosis is just 20 months.

Facts about Motor Neurone Disease 

  • MND is a rapidly progressing terminal neurological illness, which stops signals from the brain reaching the muscles. This causes muscle weakness and wasting.
  • Symptoms may include losing the ability to walk, talk, eat, drink or breathe unaided.
  • Average life expectancy is just 20 months after diagnosis.*
  • There are over 450 people in Scotland currently living with MND.
  • On average almost 200 people are diagnosed each year in Scotland.*
  • 53% die within one year of diagnosis.*
  • 6.5% live for more than 5 years after diagnosis.* 
  • MND is on the increase. We do not yet know why, which is why it is so important for MND Scotland to continue investing in research.

*data from the Scottish MND Register 2015 and 2016.

About MND Scotland 

MND Scotland is the leading charity in Scotland providing care and support to people affected by Motor Neurone Disease, as well as funding vital research into finding a cure.

We campaign on behalf of people affected by MND, and raise awareness of the disease, to ensure their voice is heard.

Downloads

Contact

Niamh Callan

Niamh Callan (Email)

Communications Manager

For all press enquiries please contact Niamh by emailing above or calling on 0141 332 3903 / 07736 269 444.

Craig Watson

Craig Watson (Email)

Communications Officer

For all press enquiries please contact Craig by emailing above or calling on 0141 332 3903 / 07736 882 415.

Latest news and events

Find out what's happening at MND Scotland.

Cumnock man living in caravan with terminal illness due to lack of accessible housing

NEWS

Drew McCartney is living in a caravan because he feels his home is no longer safe for him to live in.

15 January 2019

ScotRail Alliance ‘Sleigh’ Fundraising Target

NEWS

ScotRail has raised over £160,000 just halfway through their charity partnership with MND Scotland.

24 December 2018

Joan's 30-year MND journey

NEWS

A former Air Force tradeswoman hasn't let MND stop her from exploring the world.

11 December 2018

MND Nurse Steps Up to China Charity Challenge

NEWS

Nurse Janice will take on Great Wall of China in memory of MND campaigner Gordon Aikman.

19 November 2018

Get updates from MND Scotland

Sign up to receive emails about our latest news, events, campaigns and services.