Media Information

About Motor Neurone Disease

Motor Neurone Disease (MND) is a rapidly progressing terminal illness, which stops signals from the brain reaching the muscles. This may cause someone to lose the ability to walk, talk, eat, drink or breathe unaided. There is currently no cure or effective treatment for MND and the average life expectancy from diagnosis is just 18 months.

Facts about Motor Neurone Disease 

  • MND is a rapidly progressing terminal neurological illness, which stops signals from the brain reaching the muscles. This causes muscle weakness and wasting.
  • Symptoms may include losing the ability to walk, talk, eat, drink or breathe unaided.
  • Average life expectancy is just 18 months after diagnosis.*
  • There are around 400 people in Scotland currently living with MND.
  • On average almost 200 people are diagnosed each year in Scotland.*
  • MND is on the increase. We do not yet know why, which is why it is so important for MND Scotland to continue investing in research.

*data from the Scottish MND Register.

About MND Scotland 

MND Scotland is the leading charity in Scotland providing care and support to people affected by Motor Neurone Disease, as well as funding vital research into finding a cure.

We campaign on behalf of people affected by MND, and raise awareness of the disease, to ensure their voice is heard.

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Contact

Niamh Callan

Niamh Callan (Email)

Communications Manager

For all press enquiries please contact Niamh by emailing above or calling on 0141 332 3903 / 07736 269 444.

Craig Watson

Craig Watson (Email)

Communications Officer

For all press enquiries please contact Craig by emailing above or calling on 0141 332 3903 / 07736 882 415.

Latest news and events

Find out what's happening at MND Scotland.

MND letters arrives at Downing Street

NEWS

The United to End MND coalition headed to Downing Street to urge the government to fund more targeted research into MND.

21 September 2021

MND letter relays the country in bid for £50 million

NEWS

From patients to the Prime Minister, a letter writen by people living with MND is relying the nation, in a call for vital research funding.

16 September 2021

One thousand miles for Cath

NEWS

Linlithgow friends complete mammoth 16-day tandem cycle, from Land’s End to John O’Groats.

03 August 2021

Hearts reveal new kit with MND Scotland logo

NEWS

Heart of Midlothian's new kit has MND Scotland's logo featured front and centre.

02 July 2021

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