Media Information

About Motor Neurone Disease

Motor Neurone Disease (MND) is a rapidly progressing terminal illness, which stops signals from the brain reaching the muscles. This may cause someone to lose the ability to walk, talk, eat, drink or breathe unaided. There is currently no cure or effective treatment for MND and the average life expectancy from diagnosis is just 18 months.

Facts about Motor Neurone Disease 

  • MND is a rapidly progressing terminal neurological illness, which stops signals from the brain reaching the muscles. This causes muscle weakness and wasting.
  • Symptoms may include losing the ability to walk, talk, eat, drink or breathe unaided.
  • Average life expectancy is just 18 months after diagnosis.*
  • There are around 400 people in Scotland currently living with MND.
  • On average almost 200 people are diagnosed each year in Scotland.*
  • MND is on the increase. We do not yet know why, which is why it is so important for MND Scotland to continue investing in research.

*data from the Scottish MND Register.

About MND Scotland 

MND Scotland is the leading charity in Scotland providing care and support to people affected by Motor Neurone Disease, as well as funding vital research into finding a cure.

We campaign on behalf of people affected by MND, and raise awareness of the disease, to ensure their voice is heard.

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Contact

Niamh Callan

Niamh Callan (Email)

Communications Manager

For all press enquiries please contact Niamh by emailing above or calling on 0141 332 3903 / 07736 269 444.

Craig Watson

Craig Watson (Email)

Communications Officer

For all press enquiries please contact Craig by emailing above or calling on 0141 332 3903 / 07736 882 415.

Latest news and events

Find out what's happening at MND Scotland.

Ice Bucket Challenge co-founder dies aged 37

NEWS

Pat Quinn, the co-creator of the Ice Bucket Challenge, has sadly passed away seven years after he was diagnosed with ALS.

23 November 2020

Landmark MND trial launches in Glasgow

NEWS

The UK's biggest MND trial has opened its third recruitment centre, in Glasgow.

19 October 2020

And the award goes to….

NEWS

Jennifer Bell, a young mum with MND, and Janice Hatrick, MND Clinical Nurse Specialist, have been recognised for their contributions to the MND community.

02 October 2020

MND victory at Scottish Charity Awards

NEWS

Congratulations to My Name'5 Doddie Foundation on their award win and to our other MND nominees.

25 September 2020

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