Media Information

About Motor Neurone Disease

Motor Neurone Disease (MND) is a rapidly progressing terminal illness, which stops signals from the brain reaching the muscles. This may cause someone to lose the ability to walk, talk, eat, drink or breathe unaided. There is currently no cure or effective treatment for MND and the average life expectancy from diagnosis is just 20 months.

Facts about Motor Neurone Disease 

  • MND is a rapidly progressing terminal neurological illness, which stops signals from the brain reaching the muscles. This causes muscle weakness and wasting.
  • Symptoms may include losing the ability to walk, talk, eat, drink or breathe unaided.
  • Average life expectancy is just 20 months after diagnosis.*
  • There are over 450 people in Scotland currently living with MND.
  • On average almost 200 people are diagnosed each year in Scotland.*
  • 53% die within one year of diagnosis.*
  • 6.5% live for more than 5 years after diagnosis.* 
  • MND is on the increase. We do not yet know why, which is why it is so important for MND Scotland to continue investing in research.

*data from the Scottish MND Register 2015 and 2016.

About MND Scotland 

MND Scotland is the leading charity in Scotland providing care and support to people affected by Motor Neurone Disease, as well as funding vital research into finding a cure.

We campaign on behalf of people affected by MND, and raise awareness of the disease, to ensure their voice is heard.

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Contact

Niamh Callan

Niamh Callan (Email)

Communications Manager

For all press enquiries please contact Niamh by emailing above or calling on 0141 332 3903 / 07736 269 444.

Craig Watson

Craig Watson (Email)

Communications Officer

For all press enquiries please contact Craig by emailing above or calling on 0141 332 3903 / 07736 882 415.

Latest news and events

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17 June 2019

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Army veteran Robert Elliot shares his diagnosis of Motor Neurone Disease for MND Action Week.

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John shares his story for MND Action Week

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John was diagnosed with MND in 2017 and is now sharing his journey to raise awareness of the disease.

17 June 2019

Bernie shares his story with MND

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Bernie opens up about his diagnosis with Motor Neurone Disease for MND Action Week.

17 June 2019

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