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Council Elections 2017 Manifesto

We developed our Council Elections 2017 manifesto using the views and experiences of people affected by Motor Neurone Disease (MND) across Scotland.

About Motor Neurone Disease 

MND is a rapidly progressing terminal neurological illness, which stops signals from the brain reaching the muscles.

This may cause someone to lose the ability to walk, talk, eat, drink or breathe unaided. There is currently no cure or effective treatment for MND and the average life expectancy from diagnosis is just 14 months.


Because MND progresses so quickly, it is essential that councils respond to the needs of those affected as quickly and effectively as possible. We called on all candidates to pledge to ensure:

Social Care meets the needs of those affected by MND

  • prioritise people affected by MND for assessment
  • implement care plans fully and quickly
  • respond quickly to the need for more care, as the disease progresses
  • deliver quality person centred care

No terminally ill person is charged for care

  • follow COSLA guidance and waive care charges for terminally ill people

People affected by MND are enabled to live full lives

  • implement effective anticipatory care planning for people affected by MND
  • provide essential equipment, such as wheelchairs, stair lifts and hoists, as soon as needed
  • make timely adaptations to homes, such as ramps and wetrooms, in anticipation of need
  • prioritise people with MND for fully accessible housing, when required

Carers are supported

  • provide appropriate, local respite care services for people affected by MND
  • adequately resource local carer centres, support services and short break provision
  • extend concessionary travel to carers in your area

 

Have a question? Contact us for more information.