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Myth-Busting MND

We're running a campaign to highlight and challenge some of the stigmas and misconceptions that exist around MND.

People with Motor Neurone Disease deserve to be treated the same as everyone else, so our 'Myth-Busting MND' campaign aims to highlight and challenge the stigmas and misconceptions faced by people with MND.

We asked people affected by MND if they had experienced any stigmas or misconceptions because of the disease. This what they told us:

Gemma

When Gemma's mother was diagnosed with MND, she was pulled into HR at work. Because of her slurred speech, the assumption was that she was drunk.

 

Ruth P

When Ruth went to the bank she felt that she was treated differently because her speech was slow.

Ruth W

Ruth shares her encounter while trying to book a hair appointment at her local salon. Due to the reaction to her slurred speech, Ruth felt that she had to leave without making an appointment.

Pamela

When Pamela's daughter was diagnosed with MND people thought that there was something wrong with her brain because her speech was slurred.

Gordon

When Gordon's MND meant that he had to use a wheelchair, he found that people would cross the street to avoid confronting him.

 

Over a dozen brave Scots shared their stories to help more people understand the disease, its impact on families and how we, as a society, can treat people with MND, with the dignity and respect they deserve. Here are just a few of those stories: 

  • Ruth Porter (Edinburgh) is a former Speech & Language Therapist. Her diagnosis means that her own speech is now slurred and that her mobility is affected. Ruth felt belittled in her local bank when the bank official expressed that she might be better off in a wheelchair.
  • Jimmy Graham (West Lothian) is a former construction worker. Before he was diagnosed with MND, people thought Jimmy was drunk because of his slurred speech.
  • Gordon Reid (Perthshire) is a former manager at a motor retailer. His employer treated him with stigma and suspicion in the lead-up to his diagnosis. Moreover, Gordon explains how people look at him as though his condition is contagious.

You can read all of our ‘Myth-Busting MND’ stories in our news section.

 

Get involved 

Help us spread awareness of the stigmas and misconceptions experienced by people with MND to help us live in a society were no one has to experience this. You can do this by:

  • Sharing our on videos on social media
  • Sharing your experiences with us @MNDScotland using #MNDaware
  • Sharing your story in the press by contacting Niamh Callan and Craig Watson in the Communications team at communications@mndscotland.org.uk

Do you want to share your story?

What is MND?

Motor Neurone Disease is a rapidly progressing terminal illness, which stops signals from the brain reaching the muscles.

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