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United to End MND

MND charities and people with MND are calling on the UK Government to fund our search for a cure with a £50m investment.

The UK Government’s funding for targeted MND research stands at around £3 million a year. That’s not enough.

We've joined forces with the My Name'5 Doddie Foundation - set up by rugby legend Doddie Weir - and the MND Association of England, Wales and Northern Ireland. Together, we're asking the UK Government to invest £50 million over 5 years to fund research into motor neurone disease.

The United to End MND campaign has already had a positive reception, with Doddie Weir meeting Secretary of State for Health & Social Care Matt Hancock last year. We are looking forward to meeting ministers later in Spring to go through our proposals in detail.

Sign the petition

As the next step in the United To End MND campaign, we've launched a petition calling for more investment in targeted MND research and a virtual centre of excellence for MND research, leading us towards treatments and cures.

The petition – in the name of Doddie Weir - is backed by a coalition of people with MND, researchers, clinicians and charities.

Can you show your support by adding your name?

Add your name to the petition

Why now?

Research into the causes and potential treatments for MND has progressed, with current trials offering real promise. But this progress is largely dependent on sufficient levels of investment.

And research costs money. Currently funding for MND research from charities outstrips that from government. Without government support this vital progress is in danger of halting.

Signing the petition is a chance for us to show public support for MND research and help make our case as strong as possible.

Add your name to the petition

What is needed?

£50 million from the Government over five years would fund a virtual centre of excellence for MND Research, providing the infrastructure needed for accelerating treatments for MND. It will bring together advances in both clinical and core science research.

The institute will make a real difference to MND research by:

  • focussing on world-leading drug discovery and development
  • developing a sustainable MND trials platform
  • implementing a rigorous clinical research programme.

For more information on the case for the institute please start with our briefing. We also have a further paper aimed at a research audience.

Who is involved?

Only by working together will we find a cure and treatments to give hope to people with MND.

That’s why people with motor neurone disease, MND Scotland, the MND Association, the My Name’5 Doddie Foundation, researchers and clinicians are collaborating on this call for UK Government action. Some pharmaceutical companies have already expressed their support too.

Spread the word

Can you help us share the petition?

The petition page is designed to help you share the petition by e-mail, Facebook or Twitter.

Please use a positive message when sharing the petition.

Here is an example message you could include when sharing the petition on social media:

This petition launched by @mndassoc, @MNDoddie5 and @MNDScotland could make a real difference to the future of MND research. [optional personal message]

I've added my name. Please join me 🔬 #United2EndMND

https://petition.parliament.uk/petitions/564582

Get involved

If you have any questions or ideas for the campaign, get in touch.

You can reach us by emailing policy@mndscotland.org.uk or by calling us on 0141 332 3903.

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“If you asked me 25 years ago if there would ever be a cure for MND, I would have said no. But now, in the next few years, I can honestly say that we will probably be able to stop MND in some forms of the disease.”

Ammar Al-Chalabi | Professor of Neurology and Complex Disease Genetics, Kings College London

Ammar Al-Chalabi | Professor of Neurology and Complex Disease Genetics, Kings College London