The scientific community is optimistic that, with the right level of funding, that will change.
Currently the UK government’s funding for targeted MND research has plateaued at around £3 million a year. That’s not enough.
Launching very soon, United To End MND brings together people with MND, researchers, clinicians and charities in a call to Government to fund a virtual centre of excellence for MND research leading us towards treatments and cures.
£50 million from the Government over five years would enable this virtual institute to provide the infrastructure needed for accelerating treatments for MND. It will bring together advances in both clinical and core science research.
The institute will make a real difference to MND research by:
A virtual institute would follow established models in other fields. Under its guidance, the already highly collaborative MND research community would act as one team without needing to be under one roof.
Research into the causes and potential treatments for MND has progressed. Scientists in the UK are establishing world-leading drug discovery processes, with current trials offering a real promise of licensed treatment for some forms of MND in just two to three years. But this progress is largely dependent on sufficient levels of investment.
However, research costs money. Currently funding for MND research from charities outstrips that from government. And without government support this vital progress is in danger of halting.
Only by working together will we find a cure and treatments to give hope to people with MND. That’s why people with MND, the MND Association, MND Scotland, the My Name’5 Doddie Foundation, researchers and clinicians are collaborating on this call for Government action. Some pharmaceutical companies have already expressed their support.
For more information please read the alliance’s Accelerating Research for a Treatment for Motor Neurone Disease briefing.
You can also read a copy of the letter we have sent to Government ministers asking for a meeting.
As soon as the campaign launches, we’ll share our ideas for how you can support our call for more funding for MND research.
This will include:
Ammar Al-Chalabi Professor of Neurology and Complex Disease Genetics, Kings College, London