Our Advocacy Service supports people affected by Motor Neurone Disease (MND) to resolve any issues and take some of the stress away from dealing with these.

Our Advocacy Service provides a link between people affected by MND, their MND Clinical Specialist and local services.

Our advocacy team are the key contacts to help with accessing social care, adaptations and equipment to enable people affected by MND to live as full a life as possible in their own homes.

In particular, the service is there to support people affected by MND in ensuring timely referrals are made to social services and care agencies, and to work alongside local integrated health boards in achieving a seamless service.

Our team will work closely with you to resolve any issues you are having and take some of the stress away from dealing with these. We can speak to organisations on your behalf to make the process easier for you.

We may be able to help you if you are having problems with, for example:

  • Accessing services from local authorities
  • Accessing free personal care
  • Getting home adaptations
  • Moving to more suitable housing
  • Accessing care packages
  • Issues with insurance companies

This service is available across Scotland and can be delivered face-to-face, depending on your location, or by phone or email.

The benefits of Advocacy

The benefits that people living with MND, and their families, are likely to gain from our service include:

  • Taking some of the pressure and stress away from you and your family
  • Making sure you are given the care and support you are entitled to
  • Ensuring you do not feel like you are dealing with issues alone
  • Allowing you and family to spend more time on activities that matter to you, rather than trying to resolve problems
  • Making sure your voice and choices are heard.

Get in touch

You can find out more by contacting us on:

North of Scotland

Carla Belkevitz
T: 07889 416 504

South of Scotland 

Suzie Sturrock
T: 07889 418 397

You will also be able to ask your MND Clinical Specialist to make a referral on your behalf.




MND Scotland is the leading charity in Scotland providing care and support to people affected by Motor Neurone Disease (MND), as well as funding vital research into finding a cure.