Benefits petition handed in to 10 Downing Street

A petition which will prevent two-tier benefits system for dying Scots has been handed in to Downing Street

Benefits petition handed in to 10 Downing Street

Posted : 07/08/2019


A petition demanding changes to the benefits system for dying people has been handed in to No. 10 Downing Street, by Downton Abbey actor Jim Carter, charity groups and campaigners living with terminal illnesses.

The joint petition between Marie Curie and the MND Association (which covers England, Wales, and Northern Ireland) was signed by over 55,000 people across the UK and, if successful, could prevent a two-tier system for Scots.

Marie Curie and MND Scotland are calling for the DWPs current six-month rule to be abolished and replaced with the new Scottish definition which comes into effect in 2020.

Last year the Social Security (Scotland) Act introduced a new definition of terminal illness for the soon to be devolved Scottish disability benefits. The new definition will allow clinicians to decide who is terminally ill for the purposes of accessing benefits and will not require dying people to prove they have less than six months to live.

However, unless the UK government’s Department for Work and Pensions (DWP) also changes its rules, then those benefits reserved to Westminster, such as Universal Credit and Employment Support Allowance (ESA), will continue to require dying people to prove they have less than six-months to live.

This will lead to terminally ill people in Scotland being able to access some benefits, such as Personal Independence Payments (PIP) fairly and quickly, but be unfairly denied for benefits administered by DWP.

Richard Meade, Head of Policy and Public Affairs at Marie Curie, said: “Last year Scotland put things right by getting rid of the six-month rule. We now need the DWP to do the same for those benefits that remain reserved. Otherwise dying Scots will miss out.”

Susan Webster, Head of Policy and Campaigns at MND Scotland, said: “Motor Neurone Disease is a rapidly progressing terminal illness with just 18 months average life expectancy from diagnosis.  To be fast-tracked for disability benefits and claim the maximum level of support, people with this devastating illness must prove they have just 6 months left to live. 

“However, this “6-month rule” is a big problem for people with MND because it is virtually impossible for them to prove how long they have left to live, meaning many do not receive the financial support they need quickly enough. We urge the UK Government to follow Scotland’s lead and scrap the “6-month rule”.

Jim Carter, Actor and Marie Curie Ambassador, said: “It seems ludicrous that, instead of enjoying life with their loved ones, dying people have to spend time filling in forms and attending interviews with benefits advisors, or must even go to coaching sessions aimed at getting them back to work.  Every day 10 people die while waiting for the benefits they need.

“That can’t be right - and is why I’ve signed the petition along with tens of thousands of other people across the UK who are urging the government to end the cruel benefit system for dying people.”

Marie Curie and the MND Association set a petition target of 17,070 signatures - one for every person in the UK who has died awaiting a decision on a benefits’ claim in the past five years.

quote marks

“We urge the UK Government to follow Scotland’s lead and scrap the 6-month rule.”

Susan Webster | Head of Policy and Campaigns

Susan Webster | Head of Policy and Campaigns

Sign-up for our email newsletter

Sign up to receive emails about our latest news, events, campaigns and services.

Latest news and events

Find out what's happening at MND Scotland.

Abbie's MND Marathon for Scots Football Star


Intensive care nurse takes on London Marathon for cousin-in-law and former Scots football star who is living with MND.

12 April 2021

Granddaughter’s 50 mile memory walk for MND


Shauna is stepping up to take part in the Virtual Kiltwalk in memory of her ‘Bampa’ who died of MND.

29 March 2021

MND drug trial launches in Inverness


The MND-SMART clinical trial opens its seventh UK centre in Inverness for participants across NHS Highland.

09 March 2021

Nucleus staff celebrate huge fundraising total


Edinburgh company raises funds in memory of colleague Mike Wallis.

12 February 2021