This information can then be used to audit against MND care standards and compare geographical areas. The register also allows people to express an interest in taking part in future research projects and donate their DNA for research purposes.
Register your details online and a member of the research team will then be in touch with you regarding signing the relevant consent form.
The Scottish MND Register is vital for us to monitor the number of cases of MND in Scotland, as well as allowing people living with MND to have direct access to MND researchers. Since 2010 the research team has registered 72% of all known MND patients.
We want to do better than this, we want to aim for 100%, so please sign up either online or ask your MND nurse for details.