• Scotland – Euan MacDonald Centre for MND Research
• London - King’s MND Care & Research Centre, London
• Sheffield - The Sheffield Institute for Translational Neuroscience (SITraN)
• Oxford – The Oxford MND Centre

• SanofiAventis – (aka Riluzole/Rilutek)
• Martindale Pharma - Teglutik (Riluzole oral suspension)
• Edaravone (Radicava)

• Genetics Home Reference: ALS (National Library of Medicine)
• Understanding ALS: Genetic Testing for ALS (ALS Association)

• MEDLINEplus
• World Federation of Neurology ALS Page

We are aware that there are a number of clinics around the world offering stem cell treatments for people with MND and the internet has many websites that promote effective MND treatments for purchase.

In nearly all of these cases, there is no evidence of safety and in all of them; there is no proof of benefit. Furthermore, these treatments are often extremely expensive, capitalising on desperation and hope, and many people with MND spend critical life savings or raise funds through family and friends for an opportunity to save their life.

Like all unproven treatments MND Scotland does not endorse these stem cell therapies because they are untested in clinical trials or have no legitimate scientific evidence to back-up their claims. MND Scotland does not advocate for any treatment unless it is proven to be safe and effective.

While it is up to each individual person whether or not they choose to pay for, and receive, unproven treatments for MND, we would strongly encourage anyone with MND who is considering this to discuss all the implications with their neurologist before making a decision.

We will continue to fund vital MND research, thanks to the generous donations from our supporters, so that one day we will realise our vision of a world without MND.