Useful Links and Resources

Emergency and Out of Hours Contact Options

Your MND Clinical Specialist does not cover out of hours emergencies. If you have a medical emergency please contact your GP’s out of hours services, call NHS 24 on 111 or call the emergency services on 999.

Alternatively, if you need to speak to someone straight away, you may wish to call the Samaritans. The number for the Samaritans is 116 123 (no area code required).

It is important that you and your family plan ahead and have discussed what to do and who to call if there is an emergency. Please see our section on Anticipatory Care Planning (ACP) for guidance on planning for emergencies.

For Carers

You may not think of yourself as a 'carer' but family members and friends who care for someone with Motor Neurone Disease (MND) may also need help and support.

Videos for Carers

We have developed animated videos with practical tips and advice, using the real voices and experiences of people affected by MND, on a series of topics. Find out more.

Carers Organisations across Scotland include:

There are many organisations that may be helpful to give relevant advice to make life easier:

National

Local

Carers Link (East Dunbartonshire)
South Lanarkshire Carers Network Limited
Vocal (Voice of Carers Across Lothian).
Wee Break Midlothian

MND Scotland also has a network of Support Groups around Scotland that may be helpful too.

Holidays and Travel

Below is our list of websites of organisations and companies which specialise in accessible accommodation and holidays:

Respite

Leuchie House

Equipment Hire

Toilets and Changing Places

If you need a place to stop for a comfort break, why not check out the Changing Places Toilet map. You may also find it really useful to buy a Radar key. As part of the National Key Scheme, a Radar key will will you access to locked public toilets across the country.

Euan’s Guide

If you have visited somewhere you would recommend to others, please post your feedback on Euan’s Guide.

Created in 2013, Euan’s Guide is a website where people can post their reviews of the accessibility of venues such as hotels, bars, restaurants, theatres and visitor attractions. As well as tourism and entertainment venues, Euan’s Guide features disabled access reviews of any place that is visited as part of everyday life such as post offices, railway stations, supermarkets and many others.

You can search for reviews

for areas that you are going to, and add reviews of places you have been.

Purple Hound

Purple Hound is new website which promotes places with good accessibility. Similar to Euan's Guide, they aim to signpost acessible venues and services to people with accessibilty needs. Purple Hound.

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